Quote from the email above......"In order to be on Dr. Phil, you have to have a problem, condition, etc., that Dr. Phil can intervene with or even fix (marital problems, stress, addiction, etc.). "
Dear Jacobs mom, firstly i think you are amazing that you and others have done all of this so far, i would like this email to go to steve Davidson, re the above quote,
You have to have a problem, condition, firstly for me, i am in south africa, i have a serious problem that i am sure we all have and would love Dr Phil to look at, I have a son with Duchenne ( a condition) who is getting worse and worse, he is 17 and i live in fear everyday that this disease will take him away, How can I and many parents like me stop living in fear, when the phone rings at work, i fear the worse, when he is out with someone i fear he has crashed in his wheelchair, when he says mom i feel funny, i am petrified his heart will stop and i wont be able to get him to someone quick enough. I also have a huge problem in the fact that not enough doctors know about duchenne and what they can and cant give my son if ever there was an emergency, will the anethetist know what anesthetic he can and cant have, will they know that surgery and the implications of that surgery could take his life, does my local GP know what medications he should give him for pain, and the list goes one.
As parents of this disease where so much can go wrong with our sons, how are we supposed to know everything, if i was that clever i would have become a doctor. 17 years on, i still have to say to a professional doctor who looks at me sideways, um you cant give my son certain anesthetics, and when he challenges me, i need to run to my notes and try and read to him why he can and cant have some things, imagine an emergency, there just would be no time, this is my problem, not only living in fear, but if we had to hand our sons over to Drs we should trust, will they know what to do to save my son.
I dont think many see the daily things parents go through to just get through the day. We need help how to control our son, who is a twin. He is going through puberty, he lashes out, is angry, and often gets sad, how do we sort out this problem in our home, i could show footage of living in a normal family with a twin with duchenne, and a twin who succeeds at everything, and an 11 year old. My son Jarryd with duchenne is really challenging to live with, he will even attack in his wheelchair, he is obsessive, and sometimes really challenging, and can drive you and the family up the wall, Dr Phil could help a family because i know there are many, with similar problems intervene and teach us how to sort out behaviour in a family living with duchenne. The other thing that could be on the show is i know in our country, school, there are some disabled schools, which my son will not attend but how do you mainstream a child with learning difficulties and the rest, that could be a great story. and a Huge problem for Dr Phil to sort out. My sons sits at home everyday, there is no public transport for a person in a wheelchair where i live, there is also not many places that sell really great wheelchairs. We also have the problem of finances, my son because we are financially blessed has everything a hoist, a adapted car, a bath lift, widened doors, a special electric bed, a ventilator a special toilet to name a few. at the moment he has been at home for 3 weeks, because our gear box went on our car, so no transport, six months ago, he was in bed for a solid month because his wheelchair broke and because we bought the chair from a company in England, they refused to honour the warranty and after much fighting, we had to pay for it ourselves, we did not have the extra cash to buy a new motor. These are just some problems i face, and i know in south africa, there are boys with duchenne who get nothing from the state, so sit in bed day in and day out without even a tv, never mind a wheelchair, because they are the poorest of poor. The world is wonderful looking after the aids and poor people who dont even have food, but there is a race of people and children who are poor, there parents have died of aids and then add duchenne. i feel that there are many problems living with disability, and i know for me i would love some help advising me on just some of the problems i face..Every time my son has a birthday, he is laughing and so excited, i hate every minute of it because it just makes him older and i am so scared that today could be his last day. I just think that Dr Phil could use any of these angles to get a family on a show. I know not even my closest family and friends realised what a mission a short trip to the shop is like when you have to just nip in. These are issues the world needs to see and would be very interesting as a programme, Living with disability using a duchenne child who would pull at heart strings
Hope this comes across the way it is intended.