Is there anyone dealing with this currently. I have the mutation for DMD but found out before deciding to have a child. I'm getting reay to start the IVF/PGD process to have a healthy child.
Please contact me if anyone has dealt with this. I could use to talk about it!
Thanks so much for your response. I am so happy that it worked out for you! I know from experience how much a child affected with DMD needs a sibling. My brother who is 30 and I are so close and he is my inspiration.
At this point, I am getting ready to start the drugs. It's scary but exciting at the same time! I feel confident with my choice to do this and your response has made me feel more at ease. It's nice to know that eventhough this is a long process, it can be quite successful!
I wish you the best with both of your children! If you ever have any questions from a person dealing with an immediate family member with DMD for almost 30 years, don't hesitate!
Thanks all for all your great information! I was actually really nervous about starting the process and specifically the drugs! It is great to hear all these positive experiences. I am pretty lucky I knew I was a carrier my whole life so I can get my one healthy child. Unfortuntaly, for me I am a manifesting carrier so I am weak and it affected my heart but I am staying positive!!
I wish you all well and I will come back soon hopefully to report another success!