Please help us get Pat on a talk show
I'm posting the letter along with the contacts that we are starting with.
Please send 2 letters each week to these contacts by email, snail mail, fax or whatever means you have available and forward the information to family and friends who are wlling to help. I will be sending 2 letters each way starting today.
Also remember to personalize the letter and please post so that we know who will be joining in the letter writing campaign.
Thanks, Donna
I am the parent of ____________, age ___ who suffers daily, yet a beautiful stranger named Pat Furlong is trying to save him, and you should book her as a guest on your show. My son is one of the thousands of children in this country afflicted by Duchenne Muscular Dystrophy. DMD is an incurable genetic disease that puts children into wheelchairs before they can drive and ends their lives while their peers attend college. Pat, who lost her two sons to this disease, co-founded a non-profit organization called Parent Project Muscular Dystrophy ( http://www.parentprojectmd.org ). Because of PPMD’s work public agencies, private research foundations, doctors and scientists have finally begun focusing their efforts on translating academic theory into experimental medications that, for the first time, show promise to end this terrible affliction which has plagued humans since time began.
Pat is a world respected expert on Duchenne, a brilliant public speaker and advocate. She can explain that Duchenne is the most common lethal hereditary childhood disease on the planet and not just some odd affliction that only happens to somebody else’s child. On the contrary, one third of the cases are spontaneous and it happens without warning. Pat is the voice for our brave boys and has created a place for Duchenne parents to connect, to learn. She has received awards like Research! America’s 2008 Gordon and Llura Gund Leadership Award, she’s been a finalist for the Nancy Grace Extraordinary Parent Contest and was profiled in the New York Times and Esquire. She can gracefully explain that the groundbreaking work of “Jerry’s Kids” isn’t enough, it's going to take more. It's going to take your effort, today, to help this beautiful stranger achieve her goal to save my son.
While I watch my child’s muscles die a little more everyday, please give Pat and DMD families all over the world a chance end the tragedy.
Thank you,
[Your Name]
[Your Address]
[Telephone or em address]
Maury Povich:
beaguest@themauryshow.com
http://www.mauryshow.com/be_a_guest.html
http://www.mauryshow.com/email.php?subject=undefined
Maury Povich Show
(212) 547-8400
401 7th Ave, New York, NY 10001 Map it | Get directions Cross Streets: Between W 32nd St and W 33rd St
Maury c/o Hotel Pennsylvania/ Grand Ballroom, 15 Penn Plaza, New York, NY 10001
ph: 212-547-8400 - fx 212-244-3548 - www.mauryshow.com
Oprah:
http://www.oprah.com/ord/plugform.jsp?plugId=216
The show's mailing address is:
PO Box 909715
Chicago, IL 60690
Harpo Productions, Harpo Studios, 110 N. Carpenter St., Chicago, Il 60607-2146
ph: 312-633-1000 - fx: 312-633-1111 - owinfrey@harpo.com
asst: Lisa Halliday - ph: 310-278-5559
member staff: ph: 312-633-1000
Phil McGraw - The Dr. Phil Show, 555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/
Dr. Phil (with this one, may be good for Kim Innabis Reader Digest letter too):
http://www.drphil.com/plugger/respond/?plugID=10720
Dr. Phil show
5482 Wilshire Boulevard #1902
Los Angeles, CA 90036
Phil McGraw - The Dr. Phil Show, 5555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/
Ellen Degeneres - The Ellen Degeneres Show, Telepictures Productions, 3500 W. Olive Avenue 10th Fl, Burbank, CA 91505
phone 818-972-0777 - fx 818-972-8960 - email: ellendegeneres@warnerbros.com
http://ellen.warnerbros.com/show/respond/?PlugID=10
http://ellen.warnerbros.com/show/respond/?PlugID=26
The Ellen DeGeneres Show
PO Box 7788
Burbank, CA 91523
Whoopi Goldberg, c/o Bragman/Nyman/Cafarelli, Pacific Design Center, 8687 Melrose Avenue, Fl 8, Los Angeles, CA 90069
ph: 310-854-4800 - fx: 310-854-4848 - email: wgoldberg@bncpr.com, www.bncpr.com
Montell Williams: Mountain Movers, Inc., 433 West 53rd Street, New York, NY 10019
ph: 212-830-0300 - fx: 212-262-4608
ALREADY SUPPORTING MD AS A CHARITY:
ZZ Top, Agency for the Performing Arts, Agency, 250 W. 57th St. Ste 1701, New York, NY 10106
phone 212-687-0092 fx 212-687-0176
Anthony Bourdain - talk show host, chef: Inkwell Management, 521 Fifty Ave., New York, NY 10175
phone 212-922-3500 - fx 212-922-0535 - email: info@inkwellmanagement.com
Kevin Costner - Creative Artists Agency, LLC, P.O. Box 240002, Los Angeles, CA 90024
no other info available
Jay Leno - NBS Studios, 3000 W. Alameda Ave., Burbank, CA 91523-0001
phone 818-840-4444 www.nbc.com
Please send 2 letters each week to these contacts by email, snail mail, fax or whatever means you have available and forward the information to family and friends who are wlling to help. I will be sending 2 letters each way starting today.
Also remember to personalize the letter and please post so that we know who will be joining in the letter writing campaign.
Thanks, Donna
I am the parent of ____________, age ___ who suffers daily, yet a beautiful stranger named Pat Furlong is trying to save him, and you should book her as a guest on your show. My son is one of the thousands of children in this country afflicted by Duchenne Muscular Dystrophy. DMD is an incurable genetic disease that puts children into wheelchairs before they can drive and ends their lives while their peers attend college. Pat, who lost her two sons to this disease, co-founded a non-profit organization called Parent Project Muscular Dystrophy ( http://www.parentprojectmd.org ). Because of PPMD’s work public agencies, private research foundations, doctors and scientists have finally begun focusing their efforts on translating academic theory into experimental medications that, for the first time, show promise to end this terrible affliction which has plagued humans since time began.
Pat is a world respected expert on Duchenne, a brilliant public speaker and advocate. She can explain that Duchenne is the most common lethal hereditary childhood disease on the planet and not just some odd affliction that only happens to somebody else’s child. On the contrary, one third of the cases are spontaneous and it happens without warning. Pat is the voice for our brave boys and has created a place for Duchenne parents to connect, to learn. She has received awards like Research! America’s 2008 Gordon and Llura Gund Leadership Award, she’s been a finalist for the Nancy Grace Extraordinary Parent Contest and was profiled in the New York Times and Esquire. She can gracefully explain that the groundbreaking work of “Jerry’s Kids” isn’t enough, it's going to take more. It's going to take your effort, today, to help this beautiful stranger achieve her goal to save my son.
While I watch my child’s muscles die a little more everyday, please give Pat and DMD families all over the world a chance end the tragedy.
Thank you,
[Your Name]
[Your Address]
[Telephone or em address]
Maury Povich:
beaguest@themauryshow.com
http://www.mauryshow.com/be_a_guest.html
http://www.mauryshow.com/email.php?subject=undefined
Maury Povich Show
(212) 547-8400
401 7th Ave, New York, NY 10001 Map it | Get directions Cross Streets: Between W 32nd St and W 33rd St
Maury c/o Hotel Pennsylvania/ Grand Ballroom, 15 Penn Plaza, New York, NY 10001
ph: 212-547-8400 - fx 212-244-3548 - www.mauryshow.com
Oprah:
http://www.oprah.com/ord/plugform.jsp?plugId=216
The show's mailing address is:
PO Box 909715
Chicago, IL 60690
Harpo Productions, Harpo Studios, 110 N. Carpenter St., Chicago, Il 60607-2146
ph: 312-633-1000 - fx: 312-633-1111 - owinfrey@harpo.com
asst: Lisa Halliday - ph: 310-278-5559
member staff: ph: 312-633-1000
Phil McGraw - The Dr. Phil Show, 555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/
Dr. Phil (with this one, may be good for Kim Innabis Reader Digest letter too):
http://www.drphil.com/plugger/respond/?plugID=10720
Dr. Phil show
5482 Wilshire Boulevard #1902
Los Angeles, CA 90036
Phil McGraw - The Dr. Phil Show, 5555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/
Ellen Degeneres - The Ellen Degeneres Show, Telepictures Productions, 3500 W. Olive Avenue 10th Fl, Burbank, CA 91505
phone 818-972-0777 - fx 818-972-8960 - email: ellendegeneres@warnerbros.com
http://ellen.warnerbros.com/show/respond/?PlugID=10
http://ellen.warnerbros.com/show/respond/?PlugID=26
The Ellen DeGeneres Show
PO Box 7788
Burbank, CA 91523
Whoopi Goldberg, c/o Bragman/Nyman/Cafarelli, Pacific Design Center, 8687 Melrose Avenue, Fl 8, Los Angeles, CA 90069
ph: 310-854-4800 - fx: 310-854-4848 - email: wgoldberg@bncpr.com, www.bncpr.com
Montell Williams: Mountain Movers, Inc., 433 West 53rd Street, New York, NY 10019
ph: 212-830-0300 - fx: 212-262-4608
ALREADY SUPPORTING MD AS A CHARITY:
ZZ Top, Agency for the Performing Arts, Agency, 250 W. 57th St. Ste 1701, New York, NY 10106
phone 212-687-0092 fx 212-687-0176
Anthony Bourdain - talk show host, chef: Inkwell Management, 521 Fifty Ave., New York, NY 10175
phone 212-922-3500 - fx 212-922-0535 - email: info@inkwellmanagement.com
Kevin Costner - Creative Artists Agency, LLC, P.O. Box 240002, Los Angeles, CA 90024
no other info available
Jay Leno - NBS Studios, 3000 W. Alameda Ave., Burbank, CA 91523-0001
phone 818-840-4444 www.nbc.com
Replies to This Discussion
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Permalink Reply by Terry Porcaro on
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Hi Donna: I have a question about the letter. The beginning line of the letter states that "they suffer daily." That statement makes a very powerful impact right at the beginning which is great because I think it will get their attention right off. However, my two grandsons are only 4 and 2 1/2 years old. At their young age, this would not be the case for them. Should I change it to read that they "suffer from a devastating disease or disorder", or for the sake of unity just leave it as it is. I do not want to start everyone picking apart the letter because it is fine the way it is. I just want to clarify this point for those of us who have sons or grandsons who are very young and only at the beginning stages. I know you said to personlize the letter, but I don't if this is considered personalizing or changing the content. I will abide by whatever you say. Terry Porcaro
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Permalink Reply by Jacobs Mommom on
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Hi Terry:
I'm going to let the writer, Paul Cliff, answer your question. The reason being is because Oprah only allows so many words or characters in the email and then it won't go thru.
Paul: Is there room for those who have younger boys to add the word will as in the will suffer daily?
Just a thought.
Terry Porcaro said:Hi Donna: I have a question about the letter. The beginning line of the letter states that "they suffer daily." That statement makes a very powerful impact right at the beginning which is great because I think it will get their attention right off. However, my two grandsons are only 4 and 2 1/2 years old. At their young age, this would not be the case for them. Should I change it to read that they "suffer from a devastating disease or disorder", or for the sake of unity just leave it as it is. I do not want to start everyone picking apart the letter because it is fine the way it is. I just want to clarify this point for those of us who have sons or grandsons who are very young and only at the beginning stages. I know you said to personlize the letter, but I don't if this is considered personalizing or changing the content. I will abide by whatever you say. Terry Porcaro
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Permalink Reply by cheryl cliff on
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Hi Terry and Donna,
I am going to jump the gun and answer this for Paul, he and I wrote the letter together, as we do everything. Terry- feel free to make changes that suit you the best however this specific letter was written with the intention of staying within the 2000 word format Oprah requires. If you have the time and interest in making the changes, and then counting the words, please feel free as long as your efforts fit Oprah's criteria so they don't throw the letter out.
thank you for doing this with us,
I wish the grandparents in MY family would join up!
cheryl
Jacobs Mommom said:Hi Terry:
I'm going to let the writer, Paul Cliff, answer your question. The reason being is because Oprah only allows so many words or characters in the email and then it won't go thru.
Paul: Is there room for those who have younger boys to add the word will as in the will suffer daily?
Just a thought.
Terry Porcaro said:Hi Donna: I have a question about the letter. The beginning line of the letter states that "they suffer daily." That statement makes a very powerful impact right at the beginning which is great because I think it will get their attention right off. However, my two grandsons are only 4 and 2 1/2 years old. At their young age, this would not be the case for them. Should I change it to read that they "suffer from a devastating disease or disorder", or for the sake of unity just leave it as it is. I do not want to start everyone picking apart the letter because it is fine the way it is. I just want to clarify this point for those of us who have sons or grandsons who are very young and only at the beginning stages. I know you said to personlize the letter, but I don't if this is considered personalizing or changing the content. I will abide by whatever you say. Terry Porcaro
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Permalink Reply by MicahsDaddy on
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i am wondering...the link provided to Oprahs website only allows 2000 characters and is for her producers. 2 things will happen if you put more than 2000 characters:
1. It will tell you to resolve the problem and then resend.
or
2. It will still send the letter, but will cut off the ending by however many characters necessary.
But since we have Oprah's actual email address above as well, then there shouldn't be a problem sending an email that is longer than 2000 characters. There is no way to cut off the ending. So if it is a little long, then shouldn't a problem as the main body would be less than 2000 and the signature would still come thru.
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Permalink Reply by Paul Cliff on
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I personally think that the more changes people make the better. It's a suggestion, not a mandate, and varying it will make it easier to slip it by spam filters and make the readers feel that what they are getting is a genuine request from real people. For Oprah, the limit is 2000 characters, including spaces and punctuation. If you need to check word count in MS Word, and probably MS-Works as well, highlight the entire text, single click the"tools" menu on your toolbar, usually at the top of the screen, and single click on "word count." If "word count" does not appear, then single click the little double arrow at the bottom of the menu that appears when you click on the "tools" menu, and more choices will appear, probably including "word count."
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Thank you everyone for your replies. I understand the need to keep the word count to 2000, so there will be very few changes. Terry
cheryl cliff said:Hi Terry and Donna,
I am going to jump the gun and answer this for Paul, he and I wrote the letter together, as we do everything. Terry- feel free to make changes that suit you the best however this specific letter was written with the intention of staying within the 2000 word format Oprah requires. If you have the time and interest in making the changes, and then counting the words, please feel free as long as your efforts fit Oprah's criteria so they don't throw the letter out.
thank you for doing this with us,
I wish the grandparents in MY family would join up!
cheryl
Jacobs Mommom said:Hi Terry:
I'm going to let the writer, Paul Cliff, answer your question. The reason being is because Oprah only allows so many words or characters in the email and then it won't go thru.
Paul: Is there room for those who have younger boys to add the word will as in the will suffer daily?
Just a thought.
Terry Porcaro said:Hi Donna: I have a question about the letter. The beginning line of the letter states that "they suffer daily." That statement makes a very powerful impact right at the beginning which is great because I think it will get their attention right off. However, my two grandsons are only 4 and 2 1/2 years old. At their young age, this would not be the case for them. Should I change it to read that they "suffer from a devastating disease or disorder", or for the sake of unity just leave it as it is. I do not want to start everyone picking apart the letter because it is fine the way it is. I just want to clarify this point for those of us who have sons or grandsons who are very young and only at the beginning stages. I know you said to personlize the letter, but I don't if this is considered personalizing or changing the content. I will abide by whatever you say. Terry Porcaro
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Permalink Reply by Lynn Bartels on
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I will get them out tommorrow in the mail and email them tonight.
Lynn Bartels
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Permalink Reply by Suzanne Desmond on
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Great Idea!! I have some other shows that I thought would be good as well. The Today show on NBC, Good Morning America on ABC, The Montel Show not sure of affiliate, The Morning Show on CBS maybe even Racheal Ray, she does more on her show than just cooking.
Suzanne
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Permalink Reply by Karen Barnett on
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I tried sending my letter out this morning using the Cliff's letter format (very nice!) but changing a few things to personalize it. I kept it under the 2000 characters.
I wasn't able to submit it on their plugform submission page. Every time I tried to send it I got an error - HTTP 500 Internet Servor Error. The Website Cannot Display the Page. So I tried sending it to owinfrey@harpo.com. It got returned to me as undeliverable - 554 mail for owinfry@harpo.com rejected for policy reasons.
Anyone else having any problems? The only thing left for me to do is to send it by mail. I'll send it out today.
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Sent one to the Ellen Degeneres Show no problem. It must be the Oprah site is experiencing problems then. I'll try sending the letter out to her again via email in a few hours.
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Hi Karen:
I just sent to Oprah thru both her website and email address and the fax went thru as well.
Karen Barnett said:Sent one the Ellen Degeneres Show no problem. It must be the Oprah site is experiencing problems then. I'll try sending the letter out to her again via email in a few hours.
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Hmm? I'll try again. I'll fax as well. Can anyone tell me what those error messages mean?
Jacobs Mommom said:Hi Karen:
I just sent to Oprah thru both her website and email address and the fax went thru as well.
Karen Barnett said:Sent one the Ellen Degeneres Show no problem. It must be the Oprah site is experiencing problems then. I'll try sending the letter out to her again via email in a few hours.
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