there was a study done in china on 10 boys with dmd. elizabeth vroom is named in the abstract (cannot seem to get full access to article if not a paying member / doctor). if i recall correctly, it mentions that not a great difference was achieved. however, i have also seen the article mentioning a cpk ngoing from close to 30k down to 15k. as it happens, i am having ndinner with a chinese doctor who practices acupunture tonight. i've already got a list of questions and will let you know what i find.
Hi Jen, Sofia
Many years ago, we became aware of a scientist/physician in China using a protocol that included an oral drink, accupuncture and physical therapy. It was suggested that boys were improved on this protocol. I am aware of one family that went to China to participate in this protocol. Elizabeth Vroom and Dr. Kaplan (france) went to China to observe. The liquid drink was boiled down from a mixture of things to include plants, herbs, centipedes (really), leaves, etc. The boys drank the 'tea' several times/day. They also received accupunture and physical therapy 2-3 times/day. Dr. Kaplan had the 'tea' examined and found that it contained plant-based steroids. There was some belief that the accupunture helped with flexibility and pain, but that there was no real benefit in terms of improved muscle strength. I have the paper and am happy to send it along if you are interested. Just send me a note. Pat@parentprojectmd.org