Hi there, I was reading your posts & this is a topic I am so interested in. I am also a carrier and it seems so long ago, but I (& my husband ;-) also tried PGD/IVF - all out of pocket as our insurance covered nothing - we didn't have a "fertility" issue. It didn't work for us - there were some pretty gigantic things wrong with every one of our embryos just in the preliminary PGD stuff, before they even thought about looking at the DMD part. We considered an egg donor as well, but knew there were no guarantees with that either & finally, made the decision to stick with just Brady =).
Anyhow, now that we've seen some of the medical costs of caring for a child with DMD, I don't understand how the insurance companies won't cover a round of IVF/PGD for known carriers. It seems so ridiculous to me. The cost of one round, even two, of PGD/IVF comes no where near the cost to provide medical coverage for a child with DMD. The cost of a power chair alone is greater than the cost of IVF!! Not to mention the cost of all the specialists a child with DMD needs to see during his lifetime. Maybe you could use that as a bargaining chip when dealing with your insurance.
I wish you the best of luck with whatever you decide to do.