Any older people actually on this site with MD?

I feel a little left out not being able to talk to anyone with MD, I have duchennes and noticed that there aren't very many people with any type of MD actually active on this board.

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Hi Jeff,
I am a mother of a son with dmd, I am from south Africa. I find it really hard to find from a young mans perspective how things work so i would love to chat to you, If you are able to help with some issues i am facing, please contact me either on direct, or if u prefer, reply to the message board, were u at the conference?
I wasn't at a conference but feel free to throw any questions you have at me. my email is if you have msn you can add it, if not just send me an email.
Hello Jeff;
I am the mom of a 31 year old son with DMD, we have browsed the site together and he too longs to link up with "older" clients. Curt's email is
Check out my page for pics of Curt.
I don't have DMD, but my son does and he is 21. So maybe I can answer some of your questions.


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