There is only 42 other boys/young men here in AK that have Duchenne and we all live an hour or more away. Or transportation is only by plane or boat. Which leads my son alone or playing with his younger sibs which are all under the age of 9, he is now 16 and becoming bored.
My son has friends at school but they aren't lining up at the door for after school studying or just hanging out. Anyone have any ideas??