All Discussions Tagged 'steroids' (10)

Discussions Replies Latest Activity

May Have To Stop Steroids

For those who have stopped steroids, what has been your experience good or bad? My son may have to come off of his deflazacort, because he…

Started by Lisa Jones

2 Sep 21, 2012
Reply by Andrea Cleary

High IGF-1

I am curious if DMD boys on steroids have a higher IGF-1 results.  I believe normal range is between 62 to 337.  We were on GH therapy for…

Started by Char Burke

3 Sep 15, 2012
Reply by Janine

Medic Alert bracelets

Max will need a medic alert bracelet since he will be starting steroids soon. Does anyone have a vendor they can recommend that sells child…

Started by Veronica E.

14 Oct 28, 2011
Reply by Wyatt's Mommy, Melissa


Hello everybody, I'm curious if anyone knows anything about Topamax (topiramate).  It's typically an anti-seizure medication.  However, my…

Started by Patty Sherman

4 Oct 16, 2011
Reply by Susan Rathfelder

Giving Steriods

We are starting Trey out on Steroids today.   He needs to be at 15mg a day.  Doctor special ordered us 5mg tablets...   Does anyone know if…

Started by Cori

6 Jul 27, 2011
Reply by Clare Harper

What time of day do you give the steroid dose?

My son is on Deflazacort every other day and we are having some increased anger and outburst issues at school.  I am wondering if anyone ou…

Started by Anne Hancock

12 Apr 6, 2010
Reply by JoAnne Powell


After reading around this section, I noticed most of your kids are on deflazacort. Where we live, prednisone is probably the only option. I…

Started by frost

1 Feb 11, 2010
Reply by Samantha Dearing

Starting steroids and diet changes

Hello all. We are going to see Dr. Wong next week and know that we are going to be starting steroids. Since our last visit we have changed…

Started by Jessica Rownd

9 Oct 25, 2009
Reply by Keith Van Houten

Panic Attack (?) and Steroids

I don't even know if this is the right place to post this, I never do! I don't even know if panic attack is the right thing to call what's…

Started by Patty Sherman

4 Oct 4, 2009
Reply by Jerry Dallapè

Prompt Delivery of Deflazacort

I was amazed this evening to find deflazacort in our mailbox. We just ordered it from Masters Marketing in the UK on the 15th. I expected i…

Started by Lisa Jones

12 Aug 25, 2008
Reply by Lisa Jones


Need help using this community site? Visit Ning's Help Page.



© 2021   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service