Pat Furlong's Discussions (39)

Discussions Replied To (35) Replies Latest Activity

"Dear Friends,   I wanted to respond to the questions about SMT C1100.    We have a p…"

Pat Furlong replied May 9, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"Hello Berit, As you might imagine, nothing is simple. In theory, IF FDA approves ata…"

Pat Furlong replied May 2, 2011 to ATALUREN - confused about the information given from PTC Therapeutics and Genzyme

51 Jun 12, 2012
Reply by Tamara Walters

"There are no words of comfort when your son finds it impossible to do the things he…"

Pat Furlong replied Mar 23, 2011 to CAN'T GET UP

16 May 21, 2011
Reply by Michael


"Notes from the call will go up on Monday. NO ONE (not this community and not PTC) is…"

Pat Furlong replied Mar 7, 2010 to Ataluren Results Announced

58 Mar 12, 2010
Reply by Marks33

"Please join the call at noon. Sincerely, Pat Furlong"

Pat Furlong replied Mar 5, 2010 to ATALUREN PARENTS WE NEED TO FIGHT

2 Mar 5, 2010
Reply by ferre

"Dear Friends, Care Considerations (cdc effort to develop standards of care) will be…"

Pat Furlong replied Oct 22, 2009 to When to start steroids... not really the same question as in other posts though

22 Dec 27, 2011
Reply by Amy Kendrick


"Kippi, It is lovely to hear your voice. I hope you and your family are doing well. W…"

Pat Furlong replied May 20, 2009 to In Memory of Shelley Burks White

6 Jun 11, 2009
Reply by Colleen

"I’m sorry I have not been available to partake in this robust discussion. Please tak…"

Pat Furlong replied May 13, 2009 to AVI - skipping 51

84 Aug 30, 2009
Reply by Ofelia Marin

"Eileen, I understand completely about the urgency/need/anxiety around the loss of a…"

Pat Furlong replied Jan 21, 2009 to AVI BioPharma Announces Successful Clinical Trial of AVI-4658 for Treatment of Duchenne Muscular Dystrophy by Exon Skipping

8 Jan 22, 2009
Reply by Mindy

"Hello Everyone, I find it is often difficult to navigate in the world of Duchenne. M…"

Pat Furlong replied Jan 7, 2009 to Running, Walking, PE and looking very normal

36 Jan 7, 2009
Reply by Joshua's mom


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