PPMD's Discussions (68)

Discussions Replied To (41) Replies Latest Activity

"Hello Frankie -- Have you been in contact with PPMD's Genetic Counselor & Duchen…"

PPMD replied Dec 19, 2013 to Is there any way of finding someone with the same deletion?

6 Dec 30, 2013
Reply by Frankie Butler

"Hi Sarah-- We shared this question on our Facebook page and got some great responses…"

PPMD replied Jun 12, 2013 to Birthday present for our son

5 Jun 17, 2013
Reply by Conrad Klahn

"Hi Amit - PPMD, along with United Parent Project MD, is co-funding studies necessary…"

PPMD replied Jan 17, 2013 to Tamoxifen

21 Jan 26, 2013
Reply by Andrea Cleary

"Joanne! Brian Denger, our Parent Advocate will be in touch. That doesn't sound right…"

PPMD replied Sep 17, 2012 to Child being restrained at school....need advice/help.

4 Sep 17, 2012
Reply by JoAnne Powell

"Any other questions on testing please dont hesitate to contact our Genetic Counselor…"

PPMD replied Sep 11, 2012 to Muscular dystrophy- need help please!

10 Sep 22, 2012
Reply by ashley s

"Hi Christine, Glad you found our site. I am happy to send you information on steroid…"

PPMD replied Jun 4, 2012 to Trials and Steroids, what to do?

4 Jun 5, 2012
Reply by Christine Jones

"Great question Liisa! We got a few other pieces of advice from some of our friends o…"

PPMD replied Mar 8, 2012 to What Home Mods are Required, Nice to have and cannot live without...

8 Mar 8, 2012
Reply by PPMD

"Hi David, I just wanted to let you know that I've flagged this as a follow up discus…"

PPMD replied Feb 16, 2012 to Summit SMT C1100 utrophin upreg phase 1 trial could start in March, results as early as September 2012

1 Feb 16, 2012
Reply by PPMD

"Hi David, If you haven't already, we recommend you view the Surgery & Anesthesi…"

PPMD replied Jan 30, 2012 to DMD boys and anesthesia

2 Jan 30, 2012
Reply by David

"Hello Janine- The major symptoms to look out for are breathing difficulties and neur…"

PPMD replied Jan 18, 2012 to fat embolism syndome

1 Jan 18, 2012
Reply by PPMD


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