Ofelia Marin's Discussions (745)

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Discussions Replied To (683) Replies Latest Activity

"I just called Kirkman. Idebenone is no longer sold online b/c it is no longer Utra-t…"

Ofelia Marin replied Nov 12, 2012 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

"Actually they have the description there: " in-frame deletion in DMD mRNA". Duchenne…"

Ofelia Marin replied Oct 25, 2012 to Normal CK Levels

 17 Oct 25, 2012
Reply by Ofelia Marin

"Deletion of 49-51 is a BMD mutation. Your son has Becker, he produces truncated dyst…"

Ofelia Marin replied Oct 25, 2012 to Normal CK Levels

 17 Oct 25, 2012
Reply by Ofelia Marin

"I think that there are cases of drugs approved in the EU (if approved by the FDA) w/…"

Ofelia Marin replied Oct 24, 2012 to Eteplirsen and GSK's EU patent

 3 Oct 24, 2012
Reply by Ofelia Marin

"Are you sure they did the correct CK test? They might also (in the future) if the CK…"

Ofelia Marin replied Oct 24, 2012 to Normal CK Levels

 17 Oct 25, 2012
Reply by Ofelia Marin

"It cannot unless Sarepta and GSK/Prosensa enter and agreement. Also, not clear how t…"

Ofelia Marin replied Oct 22, 2012 to Eteplirsen and GSK's EU patent

 3 Oct 24, 2012
Reply by Ofelia Marin

"Mindy, that is horrific. And this coming from a company making billions in profit???…"

Ofelia Marin replied Oct 18, 2012 to In the trenches - clinical trial participation

 2 Oct 18, 2012
Reply by Ofelia Marin

"Well, this can be only injected one time as the body will produce immunity against t…"

Ofelia Marin replied Sep 12, 2012 to Large Animal Data with AAV and Exon skipping

 5 Jan 13, 2013
Reply by Tulika

"" Even though expressing such a truncated dystrophin markedly improved muscle functi…"

Ofelia Marin replied Sep 11, 2012 to Large Animal Data with AAV and Exon skipping

 5 Jan 13, 2013
Reply by Tulika

"I have the full copy. Once they inject this one time they cannot repeat treatment. S…"

Ofelia Marin replied Sep 11, 2012 to Large Animal Data with AAV and Exon skipping

 5 Jan 13, 2013
Reply by Tulika

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