Ofelia Marin's Discussions (745)

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Discussions Replied To (683) Replies Latest Activity

"When any of us asks the doctor what our chance is to have another son with DMD, we d…"

Ofelia Marin replied Nov 19, 2012 to Gonadal Mosaic

 17 Nov 21, 2012
Reply by Jonathan

"The 10-15% chance is ridiculous, as it depends on how many eggs carry the mutation.…"

Ofelia Marin replied Nov 19, 2012 to Gonadal Mosaic

 17 Nov 21, 2012
Reply by Jonathan

"Thank you for letting me know. I plan to start lisinopril in my 5 yo, however I reme…"

Ofelia Marin replied Nov 19, 2012 to Perindopril very early in disease

 16 Nov 19, 2012
Reply by Ofelia Marin

"Kirkman still sells Idebenone. See my previous message. You can order by phone. "

Ofelia Marin replied Nov 15, 2012 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

"Wow, so young. Does it have any long term side effects? "

Ofelia Marin replied Nov 15, 2012 to Perindopril very early in disease

 16 Nov 19, 2012
Reply by Ofelia Marin

"Actually, there is no data proving this. There are a couple of non-carrier moms here…"

Ofelia Marin replied Nov 14, 2012 to Gonadal Mosaic

 17 Nov 21, 2012
Reply by Jonathan

"What age have they started treatment? I see the next trial they start b/w 3 and 5 yo…"

Ofelia Marin replied Nov 14, 2012 to Perindopril very early in disease

 16 Nov 19, 2012
Reply by Ofelia Marin

"Exactly! That is way they postponed the end date to Dec 2013, one year delay... "

Ofelia Marin replied Nov 13, 2012 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

"Is Smart Powder's ultra-tested? If not, then they are both the same. Kirkman did not…"

Ofelia Marin replied Nov 12, 2012 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

"This is Santhera's trial. They need 240 subjects, age 10-18: http://www.clinicaltria…"

Ofelia Marin replied Nov 12, 2012 to No Idebenone Online Anymore

 42 Dec 5, 2013
Reply by Tanja Petrovic

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