PPMD Community

Ofelia Marin's Discussions (745)

Search Discussions

View

Discussions Replied To (683) Replies Latest Activity

"Jennifer, How do you know that they will be 'the first center starting phase 3'? Hav…"

Ofelia Marin replied Jul 2, 2014 to Moving to the US. Which city could be a good place for Duchenne management?

 5 Jul 14, 2014
Reply by Rupjani B

"Wasn't he vomiting when you started Idebenone as well? I remember someone posting ab…"

Ofelia Marin replied Aug 29, 2013 to Vomiting During 10 Days OFF In DMD?

 2 Aug 29, 2013
Reply by Moein

"Thank you David."

Ofelia Marin replied Jul 8, 2013 to Spironolactone/Lisinopril

 13 Sep 11, 2013
Reply by David

"25 mg pill spironolactone? how about the lisinopril? "

Ofelia Marin replied Jul 2, 2013 to Spironolactone/Lisinopril

 13 Sep 11, 2013
Reply by David

"Agree! Sarepta already shows correlation b/w dystrophin and stability in 6 mwt, and…"

Ofelia Marin replied Jun 24, 2013 to for folks needing exon 53 skipping

 1 Jun 24, 2013
Reply by Ofelia Marin

"They do exclude 'older' more advanced boys and recently younger ones (age 5-7) from…"

Ofelia Marin replied Jun 17, 2013 to 6 minute walk? what is considered ambulatory?

 6 Jun 17, 2013
Reply by Tulika

"It's Shire (big pharma company with lots of money) working on it... We haven't heard…"

Ofelia Marin replied Mar 28, 2013 to Is The Development Of ACE 031 Trminated?!!!!

 1 Mar 28, 2013
Reply by Ofelia Marin

"What I meant was before heart disease, asymptomatic. And this where they use lisinop…"

Ofelia Marin replied Mar 19, 2013 to Eplerenone study - moving along nicely

 4 Mar 19, 2013
Reply by David

"This is early treatment before any heart modifications correct? Is this used in comb…"

Ofelia Marin replied Mar 18, 2013 to Eplerenone study - moving along nicely

 4 Mar 19, 2013
Reply by David

"Are you using the total dose for the week split by 2 days? Your doctor might want to…"

Ofelia Marin replied Jan 23, 2013 to Long-term benefits and adverse effects of intermittent versus daily glucocorticoids in boys with Duchenne muscular dystrophy.

 12 Apr 15, 2013
Reply by Tulika

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

October 2017
SMTWTFS
1234567
891011121314
15161718192021
22232425262728
293031
       

© 2017   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service