Terry Porcaro's Discussions (155)

Discussions Replied To (119) Replies Latest Activity

"Naomi:  Does Joshua see Dr. Wong's team at Cincinnati Children's Hospital because we…"

Terry Porcaro replied Jul 28, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"Along this same thread about the severity/different progression of this disease:  My…"

Terry Porcaro replied Jul 7, 2011 to Severity of DMD?

19 Aug 16, 2011
Reply by Candice Wright

"Having two little grandsons with duplications, I would also like to know the details…"

Terry Porcaro replied Jul 6, 2011 to Personalized medicine for rare mutations READ THIS

2 Jul 6, 2011
Reply by Terry Porcaro

"Naomi:  At what age did Joshua start taking Idebenone?  My grandsons are 5 and 6 1/2…"

Terry Porcaro replied May 12, 2011 to Idebenone

35 Jul 28, 2014
Reply by Rahul Deshpande

"Also, isn't PTC Therapeutics working on utrophin upregulation?  Maybe they would be…"

Terry Porcaro replied May 5, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"Amit:  I wasn't aware that BioMarin scrapped their utrophin research entirely.  I th…"

Terry Porcaro replied May 5, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"Your son sounds very much like my grandson.  I'm assuming this "spitting" problem is…"

Terry Porcaro replied Apr 27, 2011 to Unable to spit

3 Apr 27, 2011
Reply by Terry Porcaro

"Thanks Patti:  One company quoted $3,999.00, which is quite a bit more than what you…"

Terry Porcaro replied Apr 26, 2011 to Chairlifts

6 Apr 26, 2011
Reply by Terry Porcaro

"Tulika:  Where did you read  about the researchers starting with healthy volunteers,…"

Terry Porcaro replied Apr 18, 2011 to Dystrophin for function and Ezh2 for generation

2 Apr 18, 2011
Reply by Tulika

"Thanks Rosalene:  That's a good suggestion about looking into buying a used one.  I'…"

Terry Porcaro replied Mar 30, 2011 to Chairlifts

6 Apr 26, 2011
Reply by Terry Porcaro

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