Terry Porcaro's Discussions (155)

Discussions Replied To (119) Replies Latest Activity

"Juan:  I am very interested to know how your boy is doing on this combination.  Can…"

Terry Porcaro replied Mar 29, 2012 to Heart Failure Drugs Preserve Muscle in Muscular Dystrophy

55 Apr 1, 2012
Reply by Peter

"I am the grandmother of two boys with DMD who are also  among the "other" 85%.  They…"

Terry Porcaro replied Mar 22, 2012 to Project Catalyst : what is the present status of their utrophin upregulation drug candidate

21 Apr 1, 2012
Reply by Cheri Gunvalson

"Ofelia:  My grandsons are on CoQ10.  Is there a major difference between CoQ10 and I…"

Terry Porcaro replied Jan 24, 2012 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"Thank you for your reply Regina.  Another friend also told me they have no problem w…"

Terry Porcaro replied Jan 10, 2012 to STAIRLIFT

3 Jan 15, 2012
Reply by Ann Avery

"I am so incredibly sorry and heartbroken for you and your family.  I will pray for a…"

Terry Porcaro replied Dec 15, 2011 to Our Max

28 Apr 29, 2012
Reply by Thomas Hoel

"Can upregulating utrophin help older boys who are already in wheelchairs?"

Terry Porcaro replied Dec 14, 2011 to Tivorsan Pharmaceuticals Biglycan: DMD research nears clinical trials

6 Dec 19, 2011
Reply by Amrit

"I'm also very interested in this.  My grandsons don't fall in the "hot-zone" either."

Terry Porcaro replied Nov 30, 2011 to A New Model for Drug Development in Rare Disease: Gaining Approval as a Class

3 Nov 30, 2011
Reply by David

"Thank you everyone for your responses.  To Joshua's Mom:  Which supplements do you u…"

Terry Porcaro replied Nov 14, 2011 to STEROIDS

6 Nov 15, 2011
Reply by Ariel Adler

"HI Naomi:  Thanks for your response.  Terry"

Terry Porcaro replied Aug 25, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"Hi Naomi:  Did Joshua start off taking 150 mg of Idebenone twice per day when he fir…"

Terry Porcaro replied Aug 24, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein


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