irishgirl's Discussions (195)

Discussions Replied To (160) Replies Latest Activity

"Awesome!!! We all just love her and are thrilled for her to be back! She will help u…"

irishgirl replied Jun 7, 2010 to ACE-031

19 Jun 17, 2010
Reply by Ofelia Marin

"This particular trial of ACE-031 is for those 4 and older with confirmed DMD diagnos…"

irishgirl replied Jun 7, 2010 to ACE-031

19 Jun 17, 2010
Reply by Ofelia Marin

"Hi Dana: irishgirl here again. Has your son had a muscle biopsy yet? That is really…"

irishgirl replied Jun 6, 2010 to ACE-031

19 Jun 17, 2010
Reply by Ofelia Marin

"Dana: What deletions does your son have? The exons are like a puzzle that fit togeth…"

irishgirl replied Jun 6, 2010 to ACE-031

19 Jun 17, 2010
Reply by Ofelia Marin

"Hi Karen: Dr. Escolar says that one is really no better than the other. They do the…"

irishgirl replied Jun 5, 2010 to ACE-031

19 Jun 17, 2010
Reply by Ofelia Marin

"That is all the information I have at present. The trial is already underway in Cana…"

irishgirl replied Jun 5, 2010 to ACE-031

19 Jun 17, 2010
Reply by Ofelia Marin

"Hi Mark: Is Matthew in 2nd grade? A solid IEP is the best place to start. Under that…"

irishgirl replied Apr 20, 2010 to Developing the proper IEP

6 Apr 20, 2010
Reply by Mark Perrotte

"Ofelia: Mat just spoke to Eric Hoffman who was completely bewildered upon hearing th…"

irishgirl replied Jan 12, 2010 to Prosensa Trail of PRO051 IMPORTANT!!!

10 Mar 7, 2010
Reply by Wyatt's Mommy, Melissa

"There are so many rumors flying around. They all need to STOP. I heard nothing like…"

irishgirl replied Jan 12, 2010 to Prosensa Trail of PRO051 IMPORTANT!!!

10 Mar 7, 2010
Reply by Wyatt's Mommy, Melissa

"I just spoke to Steven with Treat-NMD is New Castle, UK. He said that since the Pros…"

irishgirl replied Jan 12, 2010 to Prosensa Trail of PRO051 IMPORTANT!!!

10 Mar 7, 2010
Reply by Wyatt's Mommy, Melissa

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