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"Although the FDA isn't fast enough we are able to acquire medications our children n…"

cheryl cliff replied Oct 19, 2011 to Santhera Presents Clinical Data of Catena® in Duchenne Muscular Dystrophy at the 2011 Congress of the World Muscle Society

 14 Nov 8, 2011
Reply by Sharon Hesterlee

"Hi David, I've met Dr Parrish since part of our participation in the study takes pla…"

cheryl cliff replied Aug 4, 2011 to Heart Failure Drugs Preserve Muscle in Muscular Dystrophy

 55 Apr 1, 2012
Reply by Peter

"My son is in the cardio study you mentioned.  He will finish his year of meds next J…"

cheryl cliff replied Aug 4, 2011 to Heart Failure Drugs Preserve Muscle in Muscular Dystrophy

 55 Apr 1, 2012
Reply by Peter

"Thank you Jon Tinsley.    Having your input in this discussion is extremely wonderfu…"

cheryl cliff replied May 26, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

 59 Sep 9, 2011
Reply by David

"Alexander is enrolled in this study.  It is to last 1 year and then I heard they are…"

cheryl cliff replied May 10, 2011 to Losartan vs Lisinopril Trial

 4 Jul 28, 2012
Reply by Peter

"Very Cool!"

cheryl cliff replied May 10, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

 59 Sep 9, 2011
Reply by David

"Keith, The information I received about this issue came directly from Pat aprox 3 ye…"

cheryl cliff replied May 9, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

 59 Sep 9, 2011
Reply by David

"Hi David, YES!!  You certainly can lobby now, but your local reps will get you furth…"

cheryl cliff replied May 8, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

 59 Sep 9, 2011
Reply by David

"Summit is currently looking for outside funds either via donations or partnering wit…"

cheryl cliff replied May 7, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

 59 Sep 9, 2011
Reply by David

"Jason, I hope your son is doing well.  I comprehend how difficult it is to be involv…"

cheryl cliff replied Apr 21, 2011 to ACE-031 Program Update From Acceleron and Shire

 30 Aug 4, 2012
Reply by Ofelia Marin

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