Donna's Discussions (87)

Discussions Replied To (71) Replies Latest Activity

"Hi Neil,  my son is still on Ataluren.  It's my understanding that they are also doi…"

Donna replied Oct 6, 2012 to Ataluren

21 Oct 11, 2013
Reply by Joanne Wechsler

"Hi Jennipher,  my son Kyle was diagnosed (out of the blue) at the age of 5, he is no…"

Donna replied Sep 18, 2012 to Confused

19 Mar 15, 2013
Reply by danielle

"So sorry to hear this news.  Sending you my prayers."

Donna replied Jul 16, 2012 to Stroke

10 Jul 17, 2012
Reply by wainaina muiruri

"Just an fyi - we get an 80 day supply from Masters Marketing for $158.10 (includes s…"

Donna replied Jun 1, 2012 to Where do I order steroids from??

7 Jun 1, 2012
Reply by Donna

"We have always ordered from Master's Marketing and have not had any problems."

Donna replied Nov 16, 2011 to Deflazacort

13 Nov 15, 2014
Reply by jiasusa5

"Given the chart link provided by Keith,  and given my son's stop codon (nonsense mut…"

Donna replied Sep 15, 2011 to Exon Skipping Confusion

23 Sep 18, 2011
Reply by Anup Kalra

"I agree - strength and patience.  If you look at my thread earlier on this as well a…"

Donna replied Aug 28, 2011 to Help with Behavioral Issues

28 Apr 22, 2014
Reply by Kathi Kinnett

"Follow up: The smallest steps can be like winning the lottery.  As noted on the orig…"

Donna replied Aug 3, 2011 to Shoe tying - DMD related or just lazy?!?!?!?

11 Aug 3, 2011
Reply by Donna

"I just received an email from MDA that they'll be launching a "Accessible Spaces Gal…"

Donna replied Jul 25, 2011 to Home modification suggestions

18 Apr 2, 2012
Reply by Loretta Memmay

"I'm glad I found this discussion.  I also have a 14 year old daughter (will be a sop…"

Donna replied Jun 3, 2011 to Siblings of boys with DMD

24 Sep 2, 2011
Reply by Robin Ecklesdafer

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2020   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service