Donna's Discussions (87)

Discussions Replied To (71) Replies Latest Activity

"Hello Eddy, my son Kyle also has deletion of exon 58. You are the first one I have f…"

Donna replied Sep 1, 2015 to Support with advice to help my son with deletion of exon 58?

6 Oct 18, 2015
Reply by Eddy Rivera

"Have not had any issues and we just received a shipment in April. I thought I also r…"

Donna replied Apr 21, 2015 to Deflazacort no longer available in the US?

7 Sep 27, 2016
Reply by Shawn

"Did you go through Masters Marketing? Here is their contact information: Julie Emms…"

Donna replied Dec 22, 2014 to Our Deflazacort shipment is being hold by FDA in the post office,anyone experienced the same situation?

6 Jan 19, 2015
Reply by David

"Angela, What kind of growth did he experience? Did he lose mobility or when you put…"

Donna replied Nov 26, 2014 to Ataluren

19 Nov 26, 2014
Reply by Donna

"I would be inclined to say yes it does - in our case - we think. However, having sai…"

Donna replied Nov 13, 2014 to Ataluren

19 Nov 26, 2014
Reply by Donna

"Be careful on the shipping charges on the deflazacort.  The first vendor we went thr…"

Donna replied Jul 24, 2014 to Results in & deflazacort

16 Jul 24, 2014
Reply by Dawn Steele

"He's definitely a special soul - I think most, if not all of these boys are.  Thanks…"

Donna replied Jan 14, 2014 to He's getting ready to ask me "the" question.... I need help with answers

6 Jan 20, 2014
Reply by PPMD

"verbage is from the IRS."

Donna replied Jan 3, 2014 to Deflazacort and Flex spending reimbursement

2 Jan 3, 2014
Reply by Donna

"Hi Jennifer,  how tall is your son now?  My son started deflazacort upon diagnosis a…"

Donna replied Dec 30, 2013 to Growth Hormone

19 Jan 14, 2014
Reply by Joy Narmore

"Hi Hally,  I'm directly across the state from you in the beautiful northwest corner…"

Donna replied Oct 11, 2013 to Questions from newly diagnosed parent

6 Oct 11, 2013
Reply by Andrew Kerr


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