bob's Discussions (25)

Discussions Replied To (23) Replies Latest Activity

"           He was on prednisone... calcium...Pepcid ac...and a couple for his heart.…"

bob replied Oct 9, 2013 to Jonah died today

25 Mar 23, 2015
Reply by danielle

"I have 2 boys with dmd . Ihave both of them on oscal 2 am and 2 pm  , their bones we…"

bob replied Apr 6, 2013 to Can A 8 Year Old Child Be Given Adult Multi-Vitamin ?

3 Apr 7, 2013
Reply by Liisa Underwood

"Sorry to hear... Both my sons have dmd ,13 and 9 .  13yo is still walking some and I…"

bob replied Feb 3, 2013 to Newly diagnosed WA state

10 Feb 28, 2013
Reply by Rouxsmom

"    I wish the best of luck to you and your child. Anything I can do .... please don…"

bob replied Dec 4, 2012 to No Gower's sign?

16 Mar 19, 2013
Reply by Janine

"       I know the only reply you would like is your son is fine, and hopefully he is…"

bob replied Dec 3, 2012 to No Gower's sign?

16 Mar 19, 2013
Reply by Janine

Staff

"Thanks for your input ... much appreciated "

bob replied Sep 27, 2012 to If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

25 Oct 18, 2013
Reply by Tina Tsonis

"     neither - except speech classes"

bob replied Sep 25, 2012 to Special Ed and IEP

4 Sep 26, 2012
Reply by Evelyn

"   Remember, you are in charge. He's your son. Both of my sons have DMD , 13 and 9,…"

bob replied Sep 25, 2012 to Special Ed and IEP

4 Sep 26, 2012
Reply by Evelyn

Staff

" My son has an insertion in exon 29 causing a frameshift. From what I can tell, Utop…"

bob replied Sep 24, 2012 to If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

25 Oct 18, 2013
Reply by Tina Tsonis

"        I am also trying to find out what is out there. In the meantime look up care…"

bob replied Sep 18, 2012 to Confused

19 Mar 15, 2013
Reply by danielle

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2021   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service