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Lori Ware's Discussions (451)

Discussions Replied To (426) Replies Latest Activity

"Does he go to MDA camp in Colorado? I hear it's awesome. Also get involved in adapti…"

Lori Ware replied Jun 5, 2016 to James Needs Summer Friends - He's Miserable

2 Jun 6, 2016
Reply by Kris Peterson

"Translarna is if your son has a non-sense mutation or a stop code.  Utrophin, C1100…"

Lori Ware replied May 2, 2016 to Hi everyone

7 May 3, 2016
Reply by Nida Zuberi

"good.  There are several mutation specific drugs that could help and one going to tr…"

Lori Ware replied May 2, 2016 to Hi everyone

7 May 3, 2016
Reply by Nida Zuberi

"Hi Vanita and welcome to the site. There is also a HUGE facebook community that is v…"

Lori Ware replied May 2, 2016 to Hi everyone

7 May 3, 2016
Reply by Nida Zuberi

"This is very odd. Was it his father pushing to get him to a different school? Do you…"

Lori Ware replied Apr 30, 2016 to Do Schools Lie to Parents? Why Would the School Court Order a Transfer NOW so close to the end of the year?I don't Understand the Rush

1 Apr 30, 2016
Reply by Lori Ware

"Sorry to hear of your diagnosis. The first few weeks are normally really really hard…"

Lori Ware replied Nov 13, 2015 to Son, 2, just got diagnosed 5 days ago. Need support!

34 Jan 14, 2016
Reply by Ginger Edwards

"Yeah, I am literally holding my breath for tomorrow (4th qtr begins!). They released…"

Lori Ware replied Sep 30, 2015 to Summit phase 1b modified results

4 Sep 30, 2015
Reply by David

"Do you have any specific info more than this? I had heard it was to be 4th qtr this…"

Lori Ware replied Sep 30, 2015 to Summit phase 1b modified results

4 Sep 30, 2015
Reply by David

"Hi Angelique, I am so sorry for your diagnosis. My son was diagnosed at 3.5, but I k…"

Lori Ware replied Jun 20, 2012 to Our Luc

19 Sep 8, 2012
Reply by Angelique Percy

"I can't tell you if it is too early or not, however, my son was not diagnosed at tha…"

Lori Ware replied Jun 6, 2012 to Is it early to start with physical therapy with boy of 18 months?

7 Jun 12, 2014
Reply by Alissa Braga

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