Cheri Gunvalson's Discussions (92)

Discussions Replied To (85) Replies Latest Activity

"MDs may start out a a lower dose and stay there for awhile for younger boys to see h…"

Cheri Gunvalson replied Sep 1, 2011 to Has anyone noticed less balance and constant falls after starting deflazacort?

12 Sep 4, 2011
Reply by Joshua's mom

"School and school activity can vary so much.  I would make sure he was well rested a…"

Cheri Gunvalson replied Aug 20, 2011 to Has anyone noticed less balance and constant falls after starting deflazacort?

12 Sep 4, 2011
Reply by Joshua's mom

"Our son refused to be in the medical stroller as he thought it made him look like a…"

Cheri Gunvalson replied Aug 11, 2011 to 3 sons with DMD and strollers

7 Aug 21, 2011
Reply by Betty Vertin

"He is doing well.  Jacob is 19 and so I prefer not discuss private issues about him…"

Cheri Gunvalson replied Aug 8, 2011 to ATALUREN - confused about the information given from PTC Therapeutics and Genzyme

51 Jun 12, 2012
Reply by Tamara Walters

"Our son was back on the drug since Feb and we just returned from a MD for the trial…"

Cheri Gunvalson replied Aug 8, 2011 to ATALUREN - confused about the information given from PTC Therapeutics and Genzyme

51 Jun 12, 2012
Reply by Tamara Walters

"Our daughter Kelsey is participating in the JettRide and she is very excited."

Cheri Gunvalson replied Apr 28, 2011 to Program for Siblings

3 Apr 28, 2011
Reply by Cheri Gunvalson

"Sharon, Thank you for the clarification.  What do you mean by "When fibroblasts (the…"

Cheri Gunvalson replied Apr 4, 2011 to clinical trial

92 Jul 8, 2011
Reply by Leeandra Arhdeacon

"Sharon, When you say it might reverse the fibrosis how will that help?  Can it rever…"

Cheri Gunvalson replied Apr 3, 2011 to clinical trial

92 Jul 8, 2011
Reply by Leeandra Arhdeacon

"Sharon, Will any of these drugs help the older DMD guys who may not have many sateli…"

Cheri Gunvalson replied Mar 29, 2011 to clinical trial

92 Jul 8, 2011
Reply by Leeandra Arhdeacon

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Cheri Gunvalson replied Mar 29, 2011 to clinical trial

92 Jul 8, 2011
Reply by Leeandra Arhdeacon

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