David's Discussions (348)

Discussions Replied To (313) Replies Latest Activity

"Thank you Pat. You'd be amazed at the relief a parent feels when an email comes into…"

David replied May 10, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"So the original question remains - Is there anything a parent can do to encourage th…"

David replied May 7, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"I don't understand either. Perhaps PPMD does. My concern is getting the attention of…"

David replied May 6, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"Yes, they believe the molecule will work, but there was a "formulation problem" at B…"

David replied May 6, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"I'm pretty sure but not certain BioMarin dropped their program. There were press rel…"

David replied May 5, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"Great news - PPMD is backing some significant research in the area.   http://www.prn…"

David replied Apr 4, 2011 to Any information regarding Sildenafil as DMD treatment?

11 Jan 16, 2013
Reply by irishgirl

"Final note here: After speaking with my son's doc and with liason from University of…"

David replied Mar 26, 2011 to Research Project similar to Duchenne Ireland study that will take US patients?

11 Mar 26, 2011
Reply by David

"My son had a clinic visit few days ago, where our doc described some very positive m…"

David replied Mar 26, 2011 to My sons deletion

18 Apr 3, 2011
Reply by Ofelia Marin

"Actually I missed the fact that PPMD was funding the Revatio trials. That's great in…"

David replied Mar 21, 2011 to Any information regarding Sildenafil as DMD treatment?

11 Jan 16, 2013
Reply by irishgirl

"Spoke to Paula, a research nurse with Dr. Wong's clinic. I learned that the research…"

David replied Feb 21, 2011 to Research Project similar to Duchenne Ireland study that will take US patients?

11 Mar 26, 2011
Reply by David

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