Featured Discussions (17)
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Propose research that is important to youAdding your experiences with Duchenne or Becker to ongoing research is vital to improve care and optimize potential therapies. But our com… Started by Holly Peay in ResearchLatest Reply |
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Staff If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co… Started by Kathi Kinnett in ResearchLatest Reply |
Newly DiagnosedOur son went into the hospital in February with a severe case of pneumonia. Saturday, he was running around like a normal kid, Sunday he st… Started by Chad Campbell in General DiscussionLatest Reply |
How did you talk to your son about DMD?My son Henry, 5 years old, was diagnosed in December. He thought the bloodwork that we had done would help the doctors fix him so he could… Started by Claire Diemler in General DiscussionLatest Reply |
Suggestions on an electronic scooterWe have 3 sons with DMD. They are currently using strollers/push chairs for long walks, but when I'm alone it is hard to push them all. O… Started by Betty Vertin in Accessibility and Disability IssuesLatest Reply |
Gonadal MosaicHey there not sure if anyone knows much about Gonadal Mosaic but that's what the geneticist told me I have meaning that some of my eggs hav… Started by Betty-Anne Heft in General DiscussionLatest Reply |
Newsletter Makeover - We need your input!PPMD's monthly newsletter is getting a makeover and we want your input! We'd love to know: What you like about the newsletter What could… Started by Will Nolan in General DiscussionLatest Reply |
Live-in caretaker for independent 28-year-oldI'm new to the parent project community and I hope you can help me with some advice.I'm researching how to find a live in caretaker. Well,… Started by Matt Wallace in General DiscussionLatest Reply |
Meal plan for boys with Duchenne?We are looking into Max attending Head Start preschool next year. I was very impressed with our local school's program when I took a tour… Started by Veronica E. in General DiscussionLatest Reply |
Easier link to PPMD/Amazon! - now use either www.ShopForOurSons.com or www.ShopForOurSons.orgHi everyone, The PPMD/Amazon effort continues to build. Now is the time to get the word out as wide as possible since the holidays are a… Started by John Smith in FundraisingLatest Reply |
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