Steroids (143)

Discussions Replies Latest Activity

Prednisone daily versus weekend (high dose 2 days per week)

Dear friends, Our son Krishna was diagnosed last Oct and he turned 7 in December 2014. He has been on a weekend dose of Prednisone for a li…

Started by Alpa Khushalani

3 Apr 30, 2015
Reply by Alpa Khushalani

Deflazacort--Let's discuss

Deflazacort was recommended for my son, age 8 (diagnosed with DMD in Feb 14). I have read the comments here and read the available facts on…

Started by Michele

4 Oct 16, 2014
Reply by Trinh Nguyen

Blood in urine

Has anyone had an experience in their sons having red or brown urine? I spoke with Healthlinks today and they suggested that maybe he had a…

Started by Joshua's mom

19 Jul 9, 2014
Reply by Kathi Kinnett

Should my son start steriods at 3 years old? Ducenne

Doctor advised to start steroids as early as 3 which is just three months away.  He said the typical is 4-5 years as there is no research o…

Started by Alissa Braga

8 Jun 20, 2014
Reply by Eileen DeLong

deflazacort and temperment advice please

I recently switched my son Danny (6) to Deflazacort. Due to extreme weight gain 25+ pounds in a few months. He started the Deflazacort two…

Started by Melissa Meller

11 Jan 21, 2014
Reply by nathasha dubarry

Deflazacort and Flex spending reimbursement

Has anyone had issues with being reimbursed for deflazacort with flex spending dollars.  Our administrators told it was because deflazacort…

Started by Donna

2 Jan 3, 2014
Reply by Donna

Anyone using the Deflazacort made by Lupin?

Just wondering if anyone is currently using the Deflazacort called "defnalone" manufactured by Lupin sold by Let me kn…

Started by Jennifer Shumsky

6 Nov 29, 2013
Reply by richard berezewski

steroid dosing every three days?

Does anyone dose their child on steroids every third day, or a four day on three day off, instead of every other day or daily?  

Started by Donna Cicardo

14 Nov 9, 2013
Reply by Janine

Switching to Daily Regimen

Please,let me know what to do if I decided to switch my son who is on 10 days on/off 30 mg to daily regimen but, with smaller dose?I mean i…

Started by Moein

0 Nov 1, 2013

deflazacort regimen

We started our son on Deflazacort at the recommended daily dosage and are wondering if anyone has been prescribed/tried alternate regimens…

Started by amit gupta

16 Nov 1, 2013
Reply by Moein


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