Social Issues (83)

Discussions Replies Latest Activity

Telling his classmates about DMD

In an effort to address his limitations and keep him safer, we have elected to have our son talk to his second grade class about his diagno…

Started by Mike O

1 Sep 2, 2016
Reply by Brenda

refusing to use the bathroom

My six and a half year old I thought was potty trained a year and a half ago but I think I was wrong. He has always had problems going poop…

Started by Holly Homa

5 Jun 2, 2016
Reply by Jenny Johnson

Congregate Living

Hello All, Is there anyone out there struggling with finding assisted living for themselves or a young adult with DMD.  I have heard of Con…

Started by Hillary Zebberman, LCSW

0 May 22, 2016

Answering questions from strangers

Hi My son is 10 years old with Duchenne . He has learning disability as well. He has a very short statute. I am in a very uneasy situation…

Started by sulthana shaik

2 Feb 8, 2016
Reply by Andrea Cleary

Anxiety and or OCD Tendencies

Does anyone experience that there child has increased anxiety or possibly even OCD tendencies? Our son is 9 years old, and in the last coup…

Started by Tammy Henegar

1 Aug 5, 2015
Reply by David

Our young adults

Hi! I would like to hear from parents of DMD boys over 18 (life after high school). My son is 19 years old and finished high school with ho…

Started by Jeanette Lindblad

6 Mar 28, 2015
Reply by tracie

A Life in Transition

There have been numerous transitions in my life, none of them easy, none of them without judgment. Ambulatory to Non-Ambulatory, Male to Fe…

Started by Maria Salamon

1 Mar 3, 2015
Reply by Kim S

The book for families to read - Intensive Care

Check out this amazing story about Mary Lou Weisman, mother of Peter who died of DMD at age 16.  Mary Lou's frank discussion of DMD - indee…

Started by Jeanette Vaughan

1 Jul 13, 2014
Reply by Cure Ethan

Help with Behavioral Issues

Hi, I was wondering if anyone whose son is on an ADHD or mood stabilizer type medication would be willing to share their experience. We ha…

Started by J's mom

28 Apr 22, 2014
Reply by Kathi Kinnett


My son Nicolas is in 4th grade.  He is a very innocent-like child in many ways.  But I do admit that sometimes he can annoy or aggravate ce…

Started by Michelle Gonzales

2 Apr 9, 2013
Reply by Michelle Gonzales


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