Research (1,306)

Discussions Replies Latest Activity

‘muscle memory’ exists at a DNA level Are there any implications on periodic dosing of steroid for DMD? 

Started by Jason Darienzo

0 Jan 30, 2018


Anyone giving Idebenone to your kids?If so, what dose and is it having anche impact?

Started by Michele Di Iorio

0 Jan 26, 2018

Facebook DMD Groups

Five months ago I found this forum and hoped that it would be a source of information about Duchenne.  Unfortunately I found that participa…

Started by Bruce Ward

0 Jan 21, 2018

Tamoxifen clinical trials

Good day, Does anyone knows if tamoxifen is recruiting now as I read before that the estimated enrollment date will be on September 2017,an…

Started by Shady

11 Jan 21, 2018
Reply by Sandro


Dear all, My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jeru…

Started by Galia Ben Ishay

47 Jan 21, 2018
Reply by Sandro

Spearville's Byrum Bittel prepares for stem cell transplant

SPEARVILLE — Over the past year, Byrum Bittel has dropped 50 to 75 pounds. He’s lost strength in his arms, and routine tasks have become mo…

Started by bob koch

18 Jan 17, 2018
Reply by jiasusa5

DMD carrier - PGD - carrier embryos

Hi,  My husband and I, have embarked upon PGD as I am a carrier of Duchenne Muscular Dystrophy (DMD). My brother passed away from dmd aged…

Started by Suki

0 Jan 3, 2018

Drug discovery could accelerate hugely with machine learning

Started by Jason Darienzo

0 Dec 14, 2017

Rapamycin prevents age-related loss of stem cells Adult stem cells replenish dying cells and regenerate damaged tissues throug…

Started by Jason Darienzo

0 Dec 8, 2017

Letter of Medical Necessity

I am trying to get home health care( nursing and aide ) for my 18 year old son who can not do ANYTHING for himself Does anyone have a good…

Started by Najat Azar

0 Nov 8, 2017


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