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Research (1,201)

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Propose research that is important to you

Adding your experiences with Duchenne or Becker to ongoing research is vital to improve care and optimize potential therapies. But our com…

Started by Holly PeayLatest Reply


Staff

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co…

Started by Kathi KinnettLatest Reply

Heart Transplant update

We wanted to give a update on Josh. Joshs 3yr. Heart Transplant anniversary is March 24!!! Transplant CAN be done in DMD!!!! Josh is prepar…

Started by TammyLatest Reply

Discussions Replies Latest Activity

Tamoxifen

Dear all, My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jeru…

Started by Galia Ben Ishay

30 yesterday
Reply by Galia Ben Ishay

Translarna otherwise know as Ataluren

Hi, i'm curoius to know if anyone outside of US and Canada has had their child on the Drug Translarna or Ataluren?  My son has been diagnos…

Started by Nadia Alaimo

0 Apr 18

frequent falls

Anyone experience many falls?even a few every day?

Started by Michele Di Iorio

1 Apr 6
Reply by Brian Denger

Chicago DMD Families

Hi ! This is Rupjani, my son Anuran was diagnosed with DMD in 2010 when we are in Wisconsin . We were there from 2010 to 2013 , after tha…

Started by Rupjani B

0 Apr 6

deflazacort dosage

Hi my son is 7 yrs old will start deflazacort.What regimen and dosage are You on?any side effects so far?

Started by Michele Di Iorio

0 Apr 5

Ataluren and Prednisone

My son is 13 years old now Ataluren and drink with him prednisone 20 mg. Should you continue to drink prednisone. How long?

Started by Mariana Mitreva

1 Apr 5
Reply by Eddy Rivera

Peptide reverses cardiac fibrosis in a preclinical model of congestive heart failure

https://www.sciencedaily.com/releases/2017/02/170221220707.htm

Started by Jason Darienzo

0 Feb 25

Astrology and MD

Started by shashi champaneria

59 Feb 16
Reply by Sai Chand. Gurujala

Exon 44 Deletion

I have just received the genetic results for Preston. They have found that he is missing Exon 44. I have been doing some research regarding…

Started by Geraldine Coolidge

23 Feb 13
Reply by Sai Chand. Gurujala

Nicotinamide riboside

I read a lot lately about vitamin Nicotinamide riboside and I was wondering if anyone ever tried this on  child , and in what doses? Here…

Started by Sanja Kogelnik

18 Feb 10
Reply by Sanja Kogelnik

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