PPMD Community

Research (1,224)

Featured Discussions

Propose research that is important to you

Adding your experiences with Duchenne or Becker to ongoing research is vital to improve care and optimize potential therapies. But our com…

Started by Holly PeayLatest Reply


If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co…

Started by Kathi KinnettLatest Reply

Heart Transplant update

We wanted to give a update on Josh. Joshs 3yr. Heart Transplant anniversary is March 24!!! Transplant CAN be done in DMD!!!! Josh is prepar…

Started by TammyLatest Reply

Discussions Replies Latest Activity

Facebook DMD Groups

Five months ago I found this forum and hoped that it would be a source of information about Duchenne.  Unfortunately I found that participa…

Started by Bruce Ward

0 17 hours ago

Tamoxifen clinical trials

Good day, Does anyone knows if tamoxifen is recruiting now as I read before that the estimated enrollment date will be on September 2017,an…

Started by Shady

11 18 hours ago
Reply by Sandro


Dear all, My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jeru…

Started by Galia Ben Ishay

47 18 hours ago
Reply by Sandro

Spearville's Byrum Bittel prepares for stem cell transplant

SPEARVILLE — Over the past year, Byrum Bittel has dropped 50 to 75 pounds. He’s lost strength in his arms, and routine tasks have become mo…

Started by bob koch

18 on Thursday
Reply by jiasusa5

DMD carrier - PGD - carrier embryos

Hi,  My husband and I, have embarked upon PGD as I am a carrier of Duchenne Muscular Dystrophy (DMD). My brother passed away from dmd aged…

Started by Suki

0 Jan 3

Drug discovery could accelerate hugely with machine learning


Started by Jason Darienzo

0 Dec 14, 2017

Rapamycin prevents age-related loss of stem cells

https://www.sciencedaily.com/releases/2017/12/171207141721.htm Adult stem cells replenish dying cells and regenerate damaged tissues throug…

Started by Jason Darienzo

0 Dec 8, 2017

Letter of Medical Necessity

I am trying to get home health care( nursing and aide ) for my 18 year old son who can not do ANYTHING for himself Does anyone have a good…

Started by Najat Azar

0 Nov 8, 2017

Drug blocks deadly muscle scarring


Started by Jason Darienzo

0 Oct 24, 2017

'CRISPR-Gold' fixes Duchenne muscular dystrophy mutation in mice without viral vector

Scientists at the University of California, Berkeley, have engineered a new way to deliver CRISPR-Cas9 gene-editing technology inside cells…

Started by Jason Darienzo

4 Oct 15, 2017
Reply by Jason Darienzo


© 2018   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service