Research (1,228)
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 Propose research that is important to youAdding your experiences with Duchenne or Becker to ongoing research is vital to improve care and optimize potential therapies. But our com… Started by Holly PeayLatest Reply |
 Staff If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co… Started by Kathi KinnettLatest Reply |
 Heart Transplant updateWe wanted to give a update on Josh. Joshs 3yr. Heart Transplant anniversary is March 24!!! Transplant CAN be done in DMD!!!! Josh is prepar… Started by TammyLatest Reply |
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 New CRISPR method efficiently corrects Duchenne muscular dystrophy defect in heart tissueScientists have developed a CRISPR gene-editing technique that can potentially correct a majority of the 3,000 mutations that cause Duchenn… Started by Jason Darienzo |
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Feb 7 Reply by Galia Ben Ishay |
 low back paindoes anyone here know what should i do with my kid as he suffers from chronic low back pain. i mean is there any treatment that we should d… Started by ahmed Sayed Abdel Gawad |
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Feb 5 Reply by Kathi Kinnett |
‘muscle memory’ exists at a DNA levelhttps://www.sciencedaily.com/releases/2018/01/180130091144.htm Are there any implications on periodic dosing of steroid for DMD? Started by Jason Darienzo |
0 | Jan 30 |
IDEBENONEAnyone giving Idebenone to your kids?If so, what dose and is it having anche impact? Started by Michele Di Iorio |
0 | Jan 26 |
 Facebook DMD GroupsFive months ago I found this forum and hoped that it would be a source of information about Duchenne. Unfortunately I found that participa… Started by Bruce Ward |
0 | Jan 21 |
Tamoxifen clinical trialsGood day, Does anyone knows if tamoxifen is recruiting now as I read before that the estimated enrollment date will be on September 2017,an… Started by Shady |
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Jan 21 Reply by Sandro |
TamoxifenDear all, My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jeru… Started by Galia Ben Ishay |
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Jan 21 Reply by Sandro |
 Spearville's Byrum Bittel prepares for stem cell transplantSPEARVILLE — Over the past year, Byrum Bittel has dropped 50 to 75 pounds. He’s lost strength in his arms, and routine tasks have become mo… Started by bob koch |
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Jan 17 Reply by jiasusa5 |
DMD carrier - PGD - carrier embryosHi, My husband and I, have embarked upon PGD as I am a carrier of Duchenne Muscular Dystrophy (DMD). My brother passed away from dmd aged… Started by Suki |
0 | Jan 3 |
Drug discovery could accelerate hugely with machine learninghttps://www.sciencedaily.com/releases/2017/12/171214144442.htm Started by Jason Darienzo |
0 | Dec 14, 2017 |
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