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Discussions	Replies	Latest Activity
Weight loss Its been a while, but Im looking for advice from others experiences in regards to medications to give weight loss. William is now 11.5 an… Started by Jonathan	1	Feb 8, 2017 Reply by Sampreet
Beckers Type MD Is the new drug - Eteplirsen - also approved for Becker's Type MD? Started by Terry Ann Attaway	2	Oct 12, 2016 Reply by Nadja
Is there a specific bed or mattess that is recommended to help with sleep Does anyone recommend a specific bed or mattress to help my son sleep? We are having to turn him over at least six times per night, he is 1… Started by Johnny	2	Sep 7, 2016 Reply by Michelle Scaglione
Does the state of Florida and Tennessee offer acceptable assistance for Duchenne patients? I am looking at a possible move to Florida (or Tennessee) from Ohio. My son is 16 and has Duchenne MD. We want to keep him in Ohio till hig… Started by ana das	0	Sep 6, 2016
Trying to reach out to parents in Louisiana:) Hi, Im looking for parents to touch base with in Louisiana. My son is 9 years old and was diagnosed at 3. We were pretty much given the dia… Started by Brandy Sonnier	2	Aug 1, 2016 Reply by Brandy Sonnier
Help getting referral from Southern CA Insurance Kaiser Permanente to Center for DMD at UCLA We live close to the Center for DMD at UCLA and want to get referral to have our son treated there. We have the HMO insurance provider Kais… Started by Chris	0	Jul 29, 2016
Spinal Fusion Surgery Refusal Greetings to all; I hope everyone's day is going well. We just found out our son, Ben, needs spinal fusion surgery, and I dread the though… Started by Brett Narmore	8	Jul 19, 2016 Reply by Brett Narmore
scoliosis My son is 14, and his docs at Scottish Rite Hospital think he needs the spinal fusion surgery for his scoliosis. I am terrified about the… Started by Joy Narmore	0	Jul 8, 2016
Bright minds team up to battle muscular dystrophy Recent Boston ABC news Bright minds team up to battle muscular dystrophy Inspirational team looks for cure for devastating disease http://… Started by Prasad Surampudi	0	Jun 16, 2016
Hello Hello everyone! I am excited to join you all in the PPMD community. Forgive me if I'm not writing this in the correct area. I'm new and lea… Started by Brandi Cammarata	3	Apr 16, 2016 Reply by Nida Zuberi