Event Details

Riding the Wave

Time: October 4, 2012 to October 6, 2012
Location: Bond University, Gold Coast, Queensland, Australia
City/Town: Gold Coast
Website or Map: http://www.ridingthewave.org.…
Phone: +61 7 40575731
Event Type: conferences and meetings
Organized By: Conference Committee
Latest Activity: Aug 22, 2012

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Event Description

RIDING THE WAVE [www.ridingthewave.org.au] is Duchenne Foundation's fourth national conference (with an international program of speakers) and in 2012 we have chosen to partner with MD QLD to bring the conference to the Gold Coast, Queensland.

You know we work hard with our partner to present unparalleled educational events with over 300 delegates with whom you can network. The program will run for three days this time since both our local centres of excellence for treatment, MontroseAccess and The Prince Charles Hospital will be conducting hands on workshops in tandem with our conference.

MD QLD and DF have chosen the Gold Coast because it is a popular family holiday destination and we wanted to give family delegates the opportunity to bring your family to enjoy the attractions and beautiful environment at the same time you update your understandings of Duchenne & Becker MD. Thus we are hoping to be able to offer a children's program while you are at the conference - so check regularly for more information being added to the conference website, which is at the moment largely a date claimer.

Send Deb an email to be added to our mail list but if you are interested, we want you to mark your calendar so you can plan and save to make this the best conference experience ever for you. Surf's up, see you on the beautiful Gold Coast.

EOI to deborah.robins@duchennefoundation.org.au

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Comment by Deb Robins on August 22, 2012 at 8:44am
Hi Michelle, you know we haven't discussed that we are working so hard to make the event itself a success. In the past we have put a few presentations, not all, online since speakers must permit & with concurrent sessions you have to choose...but I'm not sure because each time we do it, we take a new partner. Wish you could come but I understand all the things going down in our lives. I still work 3 days a week at school and my sister passed away far away a couple weeks ago, so there are always unexpected events and sacrifices have to be made even if the boys are well. Perhaps you can persuade your son's PT, HOSE or neurologist to attend as we will give statements to earn continuing education points for professionals. I guess they have the knowledge then to intervene with many more boys during their careers. Sorry to hear Aaron is uncomfortable and hope it gets sorted fast. Thanks for any promotion you can do in your networks and with families and professionals in Adelaide.
Comment by Michelle Hagarty on August 22, 2012 at 6:59am
Hi Deb, I really thought I was going to make it this year but unfortunately won't be able to. I'm taking Aaron on a school camp to Canberra a few weeks after the conference & have to take a week off work for that. I've also been having time off work during the year to Aaron to Adelaide for treatment on compressed fractures of his spine. This has been monthly trips with 3 more to go that we know of. I hope it goes really well for all involved. Will there be any information available online etc that we can look at?
Comment by Deb Robins on August 22, 2012 at 6:05am
REMINDER: We are now down to single digit countdown before the Early Bird registrations deadline closes in just over a week - Aug 31st.

We want to welcome you to the Gold Coast, to Ride the Wave of change for the care and treatment of the major muscle conditions - with a focus on Duchenne & Becker.

Website: http://www.ridingthewave.org.au
Newsletter: http://www.scoop.it/t/the-inside-scoop-on-the-national-conference-o...

With 13+ international headliners from American and Europe, not including industry speakers, this is an unprecedented educational opportunity targeting the whole neuromuscular community including family members and educators. Please scan the latest copy of the draft program attached.

Visit the conference website for more information, or scan our online newsletter including the latest version of the program.

This is a world class event on our doorstep - unparalleled. Even overseas travel would not locate an international conference of this calibre targeting both medicos and laypersons, and hosting so many world experts -plus the best from around Australia.

There is nothing more important on the horizon for your son, than learning how to optimize him, that's why three organizations have stepped up to assist families financially to experience this program.

By contacting Helen Posselt there is definitely assistance for family members, made available by the conference partners Duchenne Foundation, Muscular Dystrophy Qld and the Muscular Dystrophy Foundation. We know that you won't regret making the decision to learn as much as you can about first-world care for your son (and rare daughter) so just do it, contact Helen to discuss your options.

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