PPMD's Every Single [One] Tour: Charleston, WV

Event Details

PPMD's Every Single [One] Tour: Charleston, WV

Time: September 9, 2017 all day
Location: Charleston, WV
Website or Map: http://www.parentprojectmd.or…
Event Type: conference, meetings, every single one tour
Organized By: PPMD
Latest Activity: Aug 10, 2017

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Event Description

Registration for this FREE day-long meeting for families is now open! Click here to register.


In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour brings updates on research, advocacy, and care to cities across the country.

Details for Our Event Near You:

  • Date & Time: Saturday, September 9, 2017 (8 AM - 6 PM)
  • Location: The Charleston Boardroom at Embassy Suites, 300 Court Street, Charleston, WV 25301
  • Cost: FREE for Duchenne/Becker community – families, professionals, and support networks
  • Registration Deadline: September 1, 2017 or until capacity is reached

Kid's Room:

There will be a supervised Kid’s Room with entertainment and crafts throughout the day. Please register your child for Kid’s Room if you plan to bring them with you!

Click here to register.

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