Webinar: How You Can Help PPMD’s Advocacy Agenda

Event Details

Webinar: How You Can Help PPMD’s Advocacy Agenda

Time: February 11, 2014 from 1pm to 2pm
Location: Online Webinar - Eastern Time Zone
Website or Map: http://www.readytalk.com/
Phone: 866.740.1260 -- Access code: 9449985
Event Type: webinar
Organized By: PPMD
Latest Activity: Feb 21, 2014

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Event Description

PPMD’s advocacy strategy is multi-agency (FDA, NIH, CDC) and multi-layered. Yes, we focus on legislation like the MD-CARE Act which has transformed the landscape in Duchenne. But we also work to shape regulatory policies that reflect the needs of our community, meeting with the FDA and EMA about how the patient voice can best be utilized to speed access to potential therapies in Duchenne.

On February 11th , Pat Furlong, Ryan Fischer and Dave Zook (FaegreBD) provided an overview of PPMD’s overarching advocacy strategy, laying out our goals for 2014 and discussing how you can get involved at our Advocacy Conference in Washington, DC and/or advocate from your home.

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