March 25, 2014 from 1pm to 2pm – Eastern Time Zone Prosensa presented a status update on Drisapersen and its follow-on compounds in a patient focused webinar hosted by United Parent Projects Muscular Dystrophy (UPPMD) on Tuesday, March 25th at 1 PM E… Organized by PPMD | Type: webinar
May 13, 2014 from 11am to 12pm – Eastern Time Zone Sarepta Therapeutics, Inc. will host a webcast and conference call for the Duchenne muscular dystrophy (DMD) community on Tuesday, May 13, 2014, beginning at 11:00 a.m. EDT (8:00 a.m. PDT / 5:00 p.m.… Organized by PPMD | Type: webinar
June 3, 2014 from 1pm to 2pm – Eastern Time Zone In a webinar hosted by United Parent Project Muscular Dystrophy, Robert Spiegel, MD, FACP, chief medical officer of PTC Therapeutics, presented an overview of the positive opinion by the Committee f… Organized by PPMD | Type: webinar, ptc, translarna, ataluren
June 5, 2014 from 12pm to 1pm – Eastern Time Zone Action Duchenne will host a webinar on behalf of Summit on Thursday, June 5th, 2014 at 5pm BST (12pm EDT). In this webinar Summit will discuss the results of the Phase 1b trial and their future plans… Organized by PPMD | Type: webinar
September 24, 2014 from 2pm to 3pm – Eastern Time Zone This is the first webinar in the 3-Part Pulmonary Care Webinar Series we are presenting this fall. September 24, 2:00-3:00 EDT: Early Pulmonary Care Speakers: Dr. Hemant Sawnani (Cincinnati Childr… Organized by PPMD | Type: webinar, pulmonary care
October 2, 2014 from 12pm to 1:30pm – Eastern Time Zone On Thursday October 2 2014 at 12 pm EDT UPPMD will organize a webinar with Prosensa. During this webinar, Prosensa will answer questions from the Duchenne Community and give an update. Questions… Organized by | Type: webinar, prosensa
October 15, 2014 from 12pm to 1pm – Eastern Time Zone Efficacy of Catena®/Raxone® (Idebenone) on Respiratory Outcome in Duchenne: Results of the phase 3 double-blind, randomized, placebo-controlled DELOS trial Santhera Pharmaceuticals presented data of… Organized by PPMD | Type: webinar, santhera
October 29, 2014 from 1pm to 2pm – Eastern Time Zone This is the second webinar in the 3-Part Pulmonary Care Webinar Series we are presenting this fall. October 29, 1:00-2:00 EST: Middle Pulmonary Care Speakers: Dr. Jonathan Finder (Children’s Hospi… Organized by PPMD | Type: webinar, pulmonary care
November 19, 2014 from 1pm to 2pm – Eastern Time Zone This is the final webinar in the 3-Part Pulmonary Care Webinar Series we are presenting this fall. November 19, 1:00-2:00 EST: Adult Pulmonary Care Speakers: Dr. Lisa Wolfe (Northwestern Universit… Organized by PPMD | Type: webinar, pulmonary care
December 17, 2014 from 1pm to 2pm – Eastern Time Zone PPMD hosted a webinar on Wednesday, December 17th to discuss combination therapies -- a group of research projects that, together, we believe will help us take a big step forward in ending Duchenne.… Organized by PPMD | Type: webinar, research
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