Annemieka Aartsma-Russ on Exon Skipping [Online Chat Oct 4]

Event Details

Annemieka Aartsma-Russ on Exon Skipping [Online Chat Oct 4]

Time: October 4, 2009 from 8pm to 9pm
Location: Duchenne Foundation Live Online Conference Room
Website or Map: http://tinyurl.com/AM-Aartsma…
Phone: +61 07 40575731
Event Type: online chat
Organized By: Deb Robins
Latest Activity: Feb 23, 2012

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Event Description

Annemieka Aartsma-Rus (The Netherlands)

presents

Live Online Chat Oct 4th AEST 8 PM

“Exon skipping for Duchenne Muscular Dystrophy”


Annemieke Aartsma-Rus will explain the rationale of the exon skipping therapy, will give an update of the current state of affairs on exon skipping clinical trials and will cover some frequently asked questions. Afterwards there will be time for you to ask any remaining questions.
Meet you there in DF's online conference room.

Check The World Clock for your local time.

Prior to the chat, why not scan the Leiden pages for Layperons maintained by Annemieka.

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Comment by Deb Robins on October 4, 2009 at 9:02am
Please write some feedback in here, so we can try to improve the next chat? I will try to make a longer tutorial to download prior because as Jules found, there were little functions we didn't use that might have helped. What topics or guests would you like to see in future months?
Comment by Deb Robins on October 4, 2009 at 8:34am
Good, you can see her boat and anchor analagy above the mutation incidence table. Others can see we were logged in on the right and still can chat on the left. Guess what? Annemeika has a presentation about different approaches apart from exon-skipping and she may be able to be our guest again late November or before the end of the year. Would you like to see her "take" on other approaches?
Comment by Deb Robins on October 4, 2009 at 8:32am

Thank you for coming and meeting this scientist. She has a big interest in parents since she took over the Leiden pages for laypersons to help us understand better. From your questions I can tell some of you understand much better than me, so getting together really helps me. I wouldn't think to ask some of your questions. I think she explains so lucidly and is always candid with her answers. Thank you & I hope you can see this photo of the chat because my recording didn't work, sorry.
Comment by Julie Gilmore on October 4, 2009 at 7:49am
Yes a big thankyou to Deb for organising this - it was wonderful to hear what Annemieke had to say, and fantastic to have the opportunity to speak with other parents too!
Comment by Ana Vaish on October 4, 2009 at 6:51am
Iam unable to connect. Is anyone else experiencing this?
Comment by Julie Gilmore on October 3, 2009 at 11:00pm
Hey Debs, I love QLD so much I married one of your "exports" LOL......Have noted any questions I have already, and look forward to hearing what Annemieka has to say tonight - very exciting indeed!
Comment by Deb Robins on October 3, 2009 at 10:35pm
Hey, watch what you say about Qld ;-) DF is a national entity with board members and stakeholders in all states. Besides, does the world good to know that Australia doesn't necessarily revolve around Melbourne or Sydney. I hope all goes fine but if not we will reschedule and use a different software site, if Annemieka is willing? Thanks for linking to Doc Guenter's paper Jules! http://www.treat-nmd.eu/about/news/news/658/ is the press release about possible future logistics from the EMEA meeting last weekend that all the PP's attended in London.
Comment by Keith Van Houten on October 3, 2009 at 2:28pm
OK, it's in Queensland, but they don't observe daylight savings - good info, thanks. FYI, Australian Daylight Savings does start this weekend in the places that do observe it, if this link is correct.

So, this should be 6 am Sunday in the US Eastern time zone - 3 am in the US pacific time zone. I'm planning on getting up early for this - "see you" online.

Thanks!
Comment by Julie Gilmore on October 1, 2009 at 2:34am
Hi Keith, QLD is hosting the event, and they (like us here in WA) do not do the whole daylight saving thing (people think their curtains will fade with the extra hour of sunshine LOL).... and I don't think the other states put they clocks forward until November, so all should be good :) glad to see you liked the paper - I thought it was really great too :)
Comment by Keith Van Houten on September 30, 2009 at 9:10pm
.. and that paper you linked, Julie, is awesome. I had not seen that before.

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