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sinde odonnell is now a member of PPMD Community
Jul 7
Jeffrey Kopp replied to Jeffrey Kopp's discussion Duchenne Boy Looking for PlayStation Buddies to Play Games With
"Yes he did. It's Liam_LGB91 now. Sorry about that!"
Jun 26
TW joined PPMD's group
Jun 24
TW joined PPMD's group
Jun 24
TW favorited Manish Sawhney's group DUPLICATION in DMD
Jun 24
TW joined Roxanne's group
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Outliers - Intermediate between Duchenne & Becker MD

The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More
Jun 24
TW joined Anthony DeVergillo's group
Jun 24
TW replied to Jeffrey Kopp's discussion Duchenne Boy Looking for PlayStation Buddies to Play Games With
"Hi,     Did Liam change his username? My son tried friending him on the PS4 and it didn't work.  My son is named Mike. His username is Mighty_Mike_23 on the PS4 if he wants to friend him."
Jun 24
Profile IconJori Winkle and Rebecca Keller joined PPMD Community
Jun 24
MPowell is now a member of PPMD Community
May 25
Lisa Jones joined Gisel Rivero's group
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Bereaved Parents

For those who have lost a child.
May 3
Stephen Hain is now a member of PPMD Community
Mar 31
Jeffrey Kopp posted a discussion

Duchenne Boy Looking for PlayStation Buddies to Play Games With

Our 10-year-old son, Liam, would like to find some new buddies to play some games on his Playstation4. He likes NHL 20, Apex Legends, Star Wars Battlefront 2, MLB The Show, Madden NFL 20, Fortnite, Destiny 2, and Minecraft. He's had some run-ins with some older boys (friends of friends) who are sometimes mean, so I thought if he found some other Duchenne boys and siblings he'd have better luck. His PS4 username is TyphoonLiam.Thanks! Jeff Kopp St. Louis, MO…See More
Mar 20
william flannery posted a discussion

Success Stories for exon 52 drug

Has there been any studies on how the exon 52 approved drug is doing?I believe it has been on the market for 3 years .See More
Mar 12
william flannery replied to william flannery's discussion Latest Webinar on Gene therapy
"Have there been any success stories on the Gene Therapy treatment that the 3-4 boys participated in over 3 years ago ?"
Mar 12
Michele Schunemann joined Holly Cahoon's group
Feb 20

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