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Latest Activity

Profile IconJenn Goldman and Sue Driscoll joined PPMD Community
Dec 3
Ashley Schea replied to ahmed Sayed Abdel Gawad's discussion foldable elecrtic wheel chair
"We went with the EZ Lite Cruiser for our 8 year old.  We had to modify it because he is a little small for it but would be perfect for a 12 year old.  It's about 60 pounds and can be folded up and put in…"
Nov 28
Satish Yadav commented on Bains's group India
"Hello, I consulted with Dr. regarding stemcell. She said its not for this disease. There are so many fake or we can say cheaters in market. Please be aware of it."
Nov 27
Satish Yadav joined Bains's group
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India

For folks to share information about any research happening in India for Duchenne.
Nov 27
Profile IconSatish Yadav, Margaret Hale and Steve grossman joined PPMD Community
Nov 26
Keith & Jill VE replied to ahmed Sayed Abdel Gawad's discussion foldable elecrtic wheel chair
"We don't own one yet, but I have read good things about the EZ Cruiser Lite and the Airhawk.  I will be following this thread to see other comments."
Nov 22
ahmed Sayed Abdel Gawad posted a discussion

foldable elecrtic wheel chair

can anyone tell me which type of electric wheelchair is a good one for my 12 years old child. i need a light one which can be folded easily to be carried in the carthanks in advanceSee More
Nov 22
Shelly posted a discussion
Nov 20
Christopher Andrews joined Karen Jones's group
Nov 17
Nithin Dev Bandakka commented on Eileen DeLong's group Exon Deletion 3-7
"Hi Praveen, my son has been recently diagnosed with exon 5-7 deletion. Exon 3-7 is the closest group to this. Can you approve my request to join the FB group? "
Nov 2
Nithin Dev Bandakka joined Eileen DeLong's group
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Exon Deletion 3-7

Connect with other families with exon deletion 3-7.
Nov 2
Shannon Cooley joined Roxanne's group
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Outliers - Intermediate between Duchenne & Becker MD

The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More
Oct 30
Sarah Kasner posted a discussion

Birthdays and Duchenne

I'm not sure the best place to post this but here is a blog post I wrote about birthdays and what it means you have kids with Duchenne.  In case it's helpful for any other parents.Don't Ever Grow Up!See More
Oct 29
Profile IconEmily Labejof and Nithin Dev Bandakka joined PPMD Community
Oct 29
Profile IconMichael Kessler, Susan Wingfield Alphousns, Leslie McIntyre and 2 more joined PPMD Community
Oct 17
Ankur Handa replied to Ankur Handa's discussion Emplaza in US
"I called Masters and they do not ship any more. Planning to get it from India as it should be possible with a US doctors prescription. "
Oct 6

Discussions

foldable elecrtic wheel chair

Started by ahmed Sayed Abdel Gawad in Accessibility and Disability Issues. Last reply by Ashley Schea Nov 28. 2 Replies

Emplaza in US

Started by Ankur Handa in Steroids. Last reply by Ankur Handa Oct 6. 2 Replies

exons 3 - 7

Started by James in General Discussion. Last reply by Eileen DeLong Sep 13. 26 Replies

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