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Latest Activity

Profile IconVachatsakis Michail and Ronald Sutherland joined PPMD Community
Jan 14
Tammy Burke, RN, BSN is now a member of PPMD Community
Jan 3
Swati joined Roxanne's group
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Outliers - Intermediate between Duchenne & Becker MD

The reading frame rule holds true 90% of the time. There remains those 10% that does not fit dmd/bmd phenotype. There is a 3rd form that may be considered as an intermediate between Duchenne and Becker MD(mild DMD or severe BMD.See More
Dec 10, 2018
ahmed Sayed Abdel Gawad posted a discussion

entering the toilet

greetingsmy son now suffers when he wants to go to the toilet when he is in school. is there any ideas about facilitating this issue for him please. forexample does the electric standing wheel chair would help in such situations.thanks and best regardsSee More
Dec 10, 2018
Profile IconAlexander Liska, Swati and Enzo Figueres joined PPMD Community
Dec 10, 2018
Profile IconJenn Goldman and Sue Driscoll joined PPMD Community
Dec 3, 2018
Enzo Figueres favorited Sarah Kasner's discussion Birthdays and Duchenne
Dec 2, 2018
Ashley Schea replied to ahmed Sayed Abdel Gawad's discussion foldable elecrtic wheel chair
"We went with the EZ Lite Cruiser for our 8 year old.  We had to modify it because he is a little small for it but would be perfect for a 12 year old.  It's about 60 pounds and can be folded up and put in…"
Nov 28, 2018
Satish Yadav commented on Bains's group India
"Hello, I consulted with Dr. regarding stemcell. She said its not for this disease. There are so many fake or we can say cheaters in market. Please be aware of it."
Nov 27, 2018
Satish Yadav joined Bains's group
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India

For folks to share information about any research happening in India for Duchenne.
Nov 27, 2018
Profile IconSatish Yadav, Margaret Hale and Steve grossman joined PPMD Community
Nov 26, 2018
Keith & Jill VE replied to ahmed Sayed Abdel Gawad's discussion foldable elecrtic wheel chair
"We don't own one yet, but I have read good things about the EZ Cruiser Lite and the Airhawk.  I will be following this thread to see other comments."
Nov 22, 2018
ahmed Sayed Abdel Gawad posted a discussion

foldable elecrtic wheel chair

can anyone tell me which type of electric wheelchair is a good one for my 12 years old child. i need a light one which can be folded easily to be carried in the carthanks in advanceSee More
Nov 22, 2018
Shelly posted a discussion
Nov 20, 2018
Christopher Andrews joined Karen Jones's group
Nov 17, 2018
Nithin Dev Bandakka commented on Eileen DeLong's group Exon Deletion 3-7
"Hi Praveen, my son has been recently diagnosed with exon 5-7 deletion. Exon 3-7 is the closest group to this. Can you approve my request to join the FB group? "
Nov 2, 2018

Discussions

entering the toilet

Started by ahmed Sayed Abdel Gawad in Research Dec 10, 2018. 0 Replies

foldable elecrtic wheel chair

Started by ahmed Sayed Abdel Gawad in Accessibility and Disability Issues. Last reply by Ashley Schea Nov 28, 2018. 2 Replies

Exon 44 n 45 deletion

Started by Shelly in Research Nov 20, 2018. 0 Replies

Birthdays and Duchenne

Started by Sarah Kasner in General Discussion Oct 29, 2018. 0 Replies

Emplaza in US

Started by Ankur Handa in Steroids. Last reply by Ankur Handa Oct 6, 2018. 2 Replies

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