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All Videos (156)
Connor's Quest for a Cure3 01:04
Mariana Livingston May 19, 2015 99 views
Computerlager Muskelgesellschaft, Februar 2014
Was haben Robotik und Muskelkrankheiten miteinander zu tun? Viel, bedenkt man den Nutzen von Robote… Marc André Wyss Jun 9, 2014 61 views
Mitchell's Journey - SPARK
BE THE SPARK I had a dream one night. A spark. And this is what followed. This short video outline… Christopher M. Jones Dec 26, 2013 100 views
No Gower's due to Drisapersen? Stop the halt! 0:09
2 years on Drisapersen (GSK/Prosensa): How much longer will he be able to do this?He's 13. Will it… Andrea Cleary Dec 19, 2013 528 views
Muscular dystrophy: fishing for a cure
Muscular dystrophy patients have a serious disease for which there is no cure. Duchenne muscular dy… Daniel McCulloch Nov 9, 2013 122 views
Giovanni's Amazing! 04:49
Mommy And Me Lisa Rivera Fiorito May 8, 2013 71 views
Mitchell's Journey - Tender Mercies: Funeral Address by Mitchell's Father
Audio of Mitchell's father's funeral address. Limited graphics. Meant to be heard - not so much see… Christopher M. Jones Apr 30, 2013 134 views
Mitchell's Journey - A Broken Heart
My son was diagnosed with duchenne muscular dystrophy in 2005. This video is a short summary of his… Christopher M. Jones Apr 30, 2013 210 views
Mitchell's Journey - Photo Essay: Facing The Darkness
Here is a short video/photo essay of our visit with Mitchell's cardiologist. His heart condition ha… Christopher M. Jones Apr 30, 2013 102 views
Mitchell's Journey - Sweet Dreams
Mitchell received a special gift from his grandparents. Medicine for the heart and soul. To learn… Christopher M. Jones Apr 30, 2013 100 views
Mitchell's Journey - Thank You
We have been humbled by the love and support of family, friends and strangers from all across the g… Christopher M. Jones Apr 30, 2013 100 views
Mitchell's Journey - Photo Essay: No Exit
On November 21, 2012 we met with the transplant director and learned that Mitchell would be denied… Christopher M. Jones Apr 30, 2013 67 views
Mitchell's Journey - Five Percent
Yesterday Mitchell received an MRI to get a clearer view of the damage to his heart. As expected, m… Christopher M. Jones Apr 30, 2013 25 views
Mitchell's Journey: Heart Failure
The ravages of heart failure are starting to take grasp of our little boy with alarming speed and i… Christopher M. Jones Apr 30, 2013 37 views
Mitchell's Journey - The Human Cost
On March 2nd, 2013, our sweet son passed away from acute heart failure as a result of Duchenne Musc… Christopher M. Jones Apr 30, 2013 24 views
Run for Our Sons 2013 01:33
Paul Johnson Apr 11, 2013 78 views
MD STARnet webinar
PPMD Apr 10, 2013 231 views
Webinar: Cardiac Care for Adults with Duchenne
Cardiac care and cardiomyopathy remain major areas of interest and concern for all people with Duch… PPMD Mar 13, 2013 460 views
Dan Pallotta: The way we think about charity is dead wrong | Video on TED.com
TED Talks Activist and fundraiser Dan Pallotta calls out the double standard that drives our broken… Andrea Cleary Mar 13, 2013 1 view
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usman iqbal Feb 22, 2013 84 views
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