"I'm sorry to hear this too. Keith and Jill, your reply was spot on. Everything you wrote was what we've experienced. Tao, the first couple years are the worst. But yes it does get better. Our 14 year old son loves life. He's had an…"
Tao Wang's Discussions
Wait four months to join clinic trial or start with prednisone now
Started this discussion. Last reply by Shawn Jun 27, 2019. 3 Replies 0 Favorites
My son Max was diagnosed with DMD less 2 weeks ago. It was hell to swallow this while keep tracking all relevant information for his treatment. We now face a dilemma and would like to hear your…Continue
Tao Wang's Page
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Profile Information
- About me:
- I am father of Max, who is now 4 and recently diagnosed with DMD
- About my family:
- My wife and I have two children, son Max who is 4 and daughter Raphael just about 9 months. I also have 2 lovely border collies who has been with my children since they were born.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Max
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- Pleasanton
- State:
- CA
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