Steve Dreher's Discussions
Aminophylline Study at Children's Hospital In Boston
Started this discussion. Last reply by Ginny Ward Mar 18, 2011. 3 Replies 0 Favorites
This is all over the internet today, but I haven't located the actual study - anyone have an idea where it is? …Continue
More from Dr. Rhodes
Started this discussion. Last reply by pop jarvis Mar 3, 2011. 1 Reply 0 Favorites
Hi Everyone, I know Dr. Rhodes has been discussed before - this is an e-mail he sent out recently - South Texas Innovative MedicineDonald A. Rhodes, D.P.M., F.A.C.F.A.S.Diplomate American Board…Continue
Dr. Fallon - Biglycan - DMX Mouse
Started this discussion. Last reply by Ofelia Marin Dec 29, 2010. 5 Replies 0 Favorites
Dr. Fallon's work is all over the web today:…Continue
Cure Duchenne's Research Index
Started this discussion. Last reply by Archana Aug 28, 2010. 1 Reply 0 Favorites
Many of you may know of this, but it's worth checking out if you haven't seen it. Lot's of great stuff in the pipeline: …Continue
Steve Dreher's Page
Profile Information
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- NH
Steve Dreher's Blog
Gus Turned 6 - The Balancing Act (plus a song!)
Posted on May 11, 2011 at 9:00pm 1 Comment 1 Favorite
It was a mere 5 months ago that I promised to write again soon - seems like only yesterday. But, Duchenne Muscular Dystrophy is a balancing act, and we ended up on one side of the see-saw. We spent the last few months taking care of Gus - we bought a new house - one that's better for him (not perfect,but better). There are far fewer stairs and a flat lot. While it seems like yesterday when I promised to write, the actual yesterday was Gus' birthday. He turned 6 and I had to write in…
ContinueHope for Gus Blog
Posted on December 30, 2010 at 7:37am 0 Comments 0 Favorites
Hello PPMD Community,
I moved a number of blog posts to PPMD from a blog I have maintained at Word Press and Blogspot for the past year. It looks as if I wrote them all today, but they reflect the past year, which was the first year since Gus' diagnosis.
I wanted to share my thoughts with this community because you are the people who truly understand the roller-coaster emotional life of having a child with DMD.
I wish you all a wonderful New…
ContinueDMD and the Economics of Our Sons' Lives
Posted on December 30, 2010 at 7:29am 2 Comments 0 Favorites
It's been almost a year since Gus was diagnosed with DMD. On the drive into work this morning, I was thinking about what I've learned about DMD since that November…
Cousin Jake
Posted on December 30, 2010 at 7:28am 3 Comments 0 Favorites
I wanted to share a poem written by Jake, Gus' oldest cousin. Jake is in 8th grade, and he has shown us his maturity, compassion and love for his cousin by…
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Were you able to attend last week's PPMD conf? Are there any further news on ACE-031?
Personally I am quite excited about ACE-031. Not sure why full community is not looking forward towards this.
Any cheerful news here.
Raktim
StaffPat Furlong said…
Welcome to the DMD community does not seem appropriate somehow. I realize you are not here by choice. Most importantly we are all here together to work, to make life different. Please let me know how to help.
Pat