Rob and Theresa Capolongo's Discussions
Started Aug 31, 2011
Is anyone using Indebenone. My son is 5 and we were thinking of starting him on this. Any advice...
Started this discussion. Last reply by David Aug 31, 2011.
NY City family here with a 5 year old with Duchenne. Is anyone using Indebenone. I know it is in clinincal trial at Chop. We were thinking of starting it. Any advice will be appreciated.
Started this discussion. Last reply by Ofelia Marin Apr 3, 2011.
My sons is 4 yrs 9 months. His deletion is big (3 to 43). Before knowing the deletion I was encouraged about exon skipping. I asked Dr Wilton from Australia if his deletion could be helped, he said…Continue
Started this discussion. Last reply by amit gupta Feb 25, 2011.
Our 4 year old son was diagnosed with Duchenne in November 2010 (Deletion 3 to 43). Under the care of Dr. Wong we are waiting for the results of a muscle biopsy to see the correct dose of steroid…Continue