Hey Linda...I left a msg on your sisters pg?? Anyway, we are not to far from you all..we live in Jackson and spend quite a bit of the summer camping and such in the Lexington area... anyway, I know that Jake lives elsewhere, but I am here if you need to talk. You can email me and I can give you my phone number...firstname.lastname@example.org
Hi Again Linda, I remember the first few weeks after my eldest nephew was diagnosed... within a few days, I made arrangements to drive out to my sister's place to be with her.... it was so hard... watching her struggle, but it does get easier, everyday your focus changes a little bit and soon you are fighting for him... I love my nephews dearly and want to wish this away, but I can't so I try my best to comfort my sister and help her through this... She often tells me just being there or listening is all she needs... How old is your nephew?
Thank you for joining this group. My sister has two boys who have both been recently diagnosed with DMD. Encourage your family to join this community... My sister has found everyone here very helpful and has found some comfort here.... Your nephew is in my prayers.