LAM-111 is a structural protien that restores muscle adhesion in boys with DMD. You can find out more on our website, www.prothelia.com. With funding and regulatory support, we are focusing on clinical trials in 2-3 years. I wish it was sooner for both our children.
hi karen, austin and max are at the adaptive ski program at the double h ranch in lake luzerne ny in those pics. we went for the first time last year and loved it. we will be there again in a few weeks. i didn't ski then but my husband did...it is the same camp they go to for disabled children every summer it is the best place ever! you can also do adaptive skiing at almost every big mountain, here in vermont at least.
We will definitely have a team at the Flying Pig this year! I am finalizing the registration page and will have it up and running soon - hopefully by the end of the week! I will email you all when it is ready.
The kids started school her last Wed. Seems to be going well for Derek at the high school. Even though we started the process for his power chair in Feb. we still do not have it. Hopefully by the end of next month. So we had to change plans. He was going to go on the bus but since he didn't have his chair his scooter doesn't fit on the bus. We did buy a accessible van last month and we are able to hook the scooter in there. So Kevin takes him and picks him up every day. He seems to be doing ok. My biggest worry was lunch. I was worried he would be alone but his best friend who is a grade above ended up being in his lunch so that is ok. Did Scott go into ninth grade? Derek was hoping to get together. Are you guys going to the telethon at all? We'll (or at least me for sure) will be there from 12 to 3.
If you happen to have any pictures, please feel free to send them to me and I will add them to our site! We have had a lot of checks still trickling into the office which is great. I will send everyone a note around the end of the month with our grand total. I do know that we have made well over $12,000!!!! We just can't thank you all enough for all of your hard work!
Have a great day :)