I just found out my child has Duchenne MD. I am hurt beyond words. I can't stop crying because I know what is to come. I joined this group so I can talk with other people who are going through the same thing.
About my family:
I have 4 children 2 girls, & 2 boys. One who is 4.5 was just diagnosed. My other son does not have the DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 10 years old. Doctors diagnosed the illness at the age of 6.5. In Ukraine, no onetreats such children. Therefore, we are forced to travel to Israel each year toseea neurologist. There we learned howto swim in the pool, ride a horse,dospecial exercises (such asstretching)every day. For 2 years we have been able to stop the disease. But last 2 years my son fells woster than it was early. Iwould liketo communicate withtheAmerican parents and doctors whoprobablyknow more about new medicinesor methods for treating this condition. My email firstname.lastname@example.org. If you have a free time write me on my email I wiil wait.
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