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Hi Isabel, so nice to hear from you and sorry it has taken me so long to reply.
I see you moved from Plantation to Ft. Lauderdale. How is you son with DMD?
My Alex is in 9th grade now-High School ! He loves it and is doing really well.
What grade is your son and where does he attend school now ?
We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...
Muchisisimas gracias por la atencion!!
Here is my email and phone number: email@example.com or (513) 765-9416