Started this discussion. Last reply by Holly Cahoon Apr 11, 2014. 5 Replies 0 Favorites
Posted on January 21, 2009 at 2:08pm 8 Comments 0 Favorites
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A couple more questions....
Did you already have everything set up in your house by the time Tyler was to this point? The biggest problem we're having right now is that our bathrooms are not accessible to his chair. The medical supply company is supposed to be contacting me, but for some reason I still havent heard from them. I'm wondering what it's going to cost to get my house completely accessible for him in his chair. And, if there's any help in paying for it....
How is Tyler and your family? Hope all is well!!!
The Focalin is a 10hour medication so, he takes it about 6:45am and it's wearing off about the time he gets out of school, so, we still deal with all of the talking in the evening. I also think Austin may be OCD... Which is the cause of so much anxiety for him. Hope this helps.
It seems that Tyler is alot like my son Austin. Austin has ADHD along with being learning delayed and having DMD... Austin will be 11 in August and I have seen such a huge decline in his abilities in just the last couple of weeks. I know Austin notices this too, and he has made comments, I think he understands more about this disease than I think he does.
I think they all do and kind of dont want us to know.... Like we all may have to face "their" (the boys') reality sooner than any of us want to.
I know exactly what you mean on being depressed and I've definitely been seeing it in myself alot lately.... Thanks for the post...
Ana smith
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