I am living living every moment of my life with a positive hope for our children. Since 1984, living with DMD affected children in our family!
Still then I am confident, Divine will arrange the miracle to take place through continuous effort of our scientists for the remedy of DMD
About my family:
My wife's name is Ena and we have one son aged Surya Prakash. Our elder son Amit, Duchenne affected, left his body in the year 2005 at the age of 17.
Name(s) of child(ren)/individual(s) with Duchenne:
Surya Prakash Das
Age(s) of child(ren)/individual(s) with Duchenne:
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hy,i`m sorry for that child who is in the sky,i know how you feel because i lose one brother too in 2004who had these desease,now i have 2 kids with DMD, let`s hope that will be good for us ,i can`t lose my boys,they are all my life.i`m sorry for this,we can talk about this.Alina