Hello, dear Darlene! My name is Margarita, I live in Ukraine, Kirovograd. I have a son who is ill with Duchenne. He is now 10.5 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats for such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we had learned how to swim in the pool, ride a horse, do special exercises (such as stretching) every day. For 2 years we have been able to stop the disease. But I would like to communicate with the American parents  and doctors who probably know more  about new  medicines or methods for treating this deasies.

As steroids are harmful, the Ukrainian doctors do not know how to carry out preventive measures. As a result the lives of children are at risk if they catch an infectious disease, or any injury or otherwise.Therefore, all these factors reduce our children’s life and its quality. If you have a little free time for me give me please your email.