Dalila Rodriguez
  • Female
  • Miami, FL
  • United States
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Name(s) of child(ren)/individual(s) with Duchenne:
Ruben and Raul
Age(s) of child(ren)/individual(s) with Duchenne:
4-6, 7-12
miami, florida

Dalila Rodriguez's Blog

PTC Therapeutics presentation at the American Academy of Neurology

Posted on April 17, 2010 at 7:28am 3 Comments

Hi, does anyone know how to get the information about the PTC presenting at the American Academy of Neurology?

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At 1:28am on May 23, 2010, Leslie Guzman said…
Hola Dalila!,

We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...

Thanks for your kind attention to this,

Mil gracias anticipadas!
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416
At 12:20am on June 22, 2009, Misty VanderWeele said…
Hi Dalila~ Welcome to Parent Project, Be sure to check out the forums...Talk to you soon.

Misty VanderWeele (Luke's Mom)

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