Connie Becker
  • 87, Female
  • Newtown Square, PA
  • United States
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  • Cheryl Markey
  • Paul Johnson
 

Connie Becker's Page

Profile Information

About me:
I am retired. I volunteer at the Phila. Museum of Art.
About my family:
Mother of 4, grandmother of 9. Two of our grandsons have Duchenne.
Name(s) of child(ren)/individual(s) with Duchenne:
Elliott Johnson and Henry Johnson
Age(s) of child(ren)/individual(s) with Duchenne:
0-3, 4-6
City:
Newtown Square, PA

Comment Wall (3 comments)

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At 3:07pm on February 6, 2009, Paul Johnson said…
Did you and my Mom get together and decide to join the site? Because yesterday she joined up. Very interesting. It must be great grandmothers think alike ;-)
At 3:05pm on February 6, 2009, Paul Johnson said…
Hello GeeGee!!!
At 2:52pm on February 6, 2009,
StaffPat Furlong said…
Dear Connie, Thanks so very much for your kind words. I sometimes think this is more difficult for grandparents with your heart breaking two times over - for your children and your grandchildren.
I am happy Elliott is in the PTC124 trial. I know you are anxious to see change but it is really important to remember that Elliott is in the Phase 2b trial. In this trial, Elliott may be on one of two doses (low/high) or placebo. Connie, we are all praying that ptc124 is the first treatment for boys with premature stop codons. Please stay in touch and let me know how he is doing. Participating in trials is really wonderful and difficult all at once, as we all wait and watch.
Warm regards,
Pat
 
 
 

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