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Colin Werth Male Farmville, VA United States: Favorite

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Colin Werth posted an event

PPMD Community Day at Lewis Ginter Botanical Garden

August 10, 2019 from 8am to 4pm

On Saturday, August 10, 2019, the Children 's Hospital of Richmond at VCU and the PPMD team will host a free day-long meeting at Lewis Ginter Botanical Gardens packed with important information families, professionals, and support networks need to know.Saturday August 10th, 2019 from 8am-4pmLocation: Lewis Ginter Botanical Gardens -1800 Lakeside Avenue Henrico, Virginia 23228Cost: FREE for Duchenne community - Families, professionals, and support networksRegistration Deadline: Monday, August…See More

Jul 29

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Profile Information

About me:: I am a 22 year old with DMD working part time as an IT specialist. I am a PAAC member and proud advocate of PPMD. I love to connect with Duchenne families, teens and adults from all over, so feel free to add me. Nice to meet you!

About my family:: I have a wonderfully supportive family and an awesome younger sister. We live in a small community in South-central Virginia. My father is a college professor and scientist.

Name(s) of child(ren)/individual(s) with Duchenne:: Me

Age(s) of child(ren)/individual(s) with Duchenne:: 19 or older

City:: Farmville

State:: Virginia

Colin Werth's Blog

My Journey on the PAAC

Posted on November 2, 2017 at 2:21pm 0 Comments 0 Favorites

I decided to join the PAAC after Parent Project’s 2015 Annual Connect conference in Washington, D.C. Annie, along with the 2015 PAAC members and a few other adults with Duchenne, hosted a pre-conference meeting for teens and adults living with Duchenne. When listening to the other adults like me speak I felt a strong connection and saw myself fitting right in up there…

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