Christine Piacentino
  • Female
  • Rochester, NY
  • United States
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Christine Piacentino's Discussions

NIH Public access policy made permanent.

Started this discussion. Last reply by Julie Garcia Mar 12, 2009. 2 Replies

Urgent call to action: Defend the NIH Public Access Policy

Started this discussion. Last reply by Christine Piacentino Sep 4, 2008. 2 Replies


Hello - Welcome to Christine Piacentino's page

Profile Information

About me:
I grew up in Manchester NH. My NH roots run deep and I visit NE often to see family and friends. I moved to the Rochester NY area in 1990, and still reside in a suburb of Rochester. I have two children. A 23 year old daughter and a 20 year old son with DMD. I have been active with PPMD since 1998.
About my family:
My daughter lives in Cincinnati OH and is working full time.. My son attends college and is majoring in Biology. My son is able to walk around the house and for short distances on level flat surfaces. My son also obtained Eagle Scout rank in Boy Scouts.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older

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Christine Piacentino's Blog

Moments in life.

Posted on August 13, 2012 at 8:21am 0 Comments

I posted a new blog post.  Please view it at:


A Mother's Wisdom!

Posted on May 10, 2012 at 11:30am 0 Comments


Last week I participated in a pod cast called Kitchen Table Conversations with HerSelf First.  I really enjoyed the conversation with Sheila Moeschen, Kathy Kinnett, and Kris Hersom.  It was truly an enlightening conversation! Click here to listen to the Podcast.


As I was preparing for this conversation, I realized that a lot of time is spent focusing on my son. As…


Bubble Gum, Duct Tape, Spit, and Wine!

Posted on May 5, 2012 at 7:41am 0 Comments

For the past month I felt like the old TV show MacGuyver more so than normal or the line from Project Runway, “Make it work!”   At the end of March I finished a five year assignment in Buffalo NY.  I live in Rochester, NY.  For anyone that doesn’t know how far that is, from my home to my office I logged approximately 176 miles round trip; about three hours a day driving.  Most people…


A little discomfort and joy!

Posted on March 18, 2012 at 1:52pm 0 Comments

Jon’s second semester at college has been rewarding and frustrating.  While Jon is on campus, things are a little easier.  Jon has a power chair that is stored on campus and he can navigate independently.  Jon doesn’t have a power chair yet permanently.   He can still walk and get in and out of a regular car, with a little help.  However, getting power chair of his own and an…


Advocacy is what we can do from home too!

Posted on February 9, 2012 at 5:47pm 0 Comments

My family has made advocacy part of our End Duchenne agenda for many years.  My daughter Kat, Jon, and I have always tried to attend the advocacy conference.  This year Kat and I will attend; but Jon’s college studies will prevent him from attending.  Biology, Analytical Chemistry, and English are taking up his free time. Jon really wants to make sure he doesn’t miss any of…


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At 4:33pm on March 19, 2011, kimmy watters said…
 hey christine   how are you, just wanted to say your son is very handsome, and is ny york ready for spring. kimmy watters
At 9:43am on February 28, 2011, Beverly DeVergillo said…

Hi Christine,

I read your blog about Jon and becoming an Eagle Scout and college next year.  Wow, great accomplishments.  My son, Anthony, is also starting college next year and we are in the process of figuring out which college to select.  Have you had any luck with either college funding or personal aide funding while in college?  Anthony will most likely commute to college too (although he would love to stay in a dorm like everyone else).  He is deciding on Computer Science, Software Engineer, or Journalism.  Take care.


At 9:14am on November 10, 2010, Suzanne Desmond said…
Thank you, I will give it a try.
At 12:42pm on November 9, 2010, Suzanne Desmond said…
I'm a comuter idiate. How do I post the Buffalo News Article to the group I started called Western New York Families. Anything you can do to help me would be great.
Thank you,
Suzanne :)
At 2:09pm on November 8, 2010, Suzanne Desmond said…
Hi Christine,
Thank you so much for joining the group I started.

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